Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

High TTG IGG while on strict gluten-free diet? (Doc snuck in celiac blood test)


EF-ATL

Recommended Posts

EF-ATL Apprentice

Hi all,

I recently had some labs done for some recurrent issues I'm having (neuropathic pain, rashes), and my PCP snuck in a celiac disease panel. The results came back normal for everything except for TTG-IGG (which was 7; apparently less than 5 is normal). I'm on a strict gluten-free diet already (long story), but my PCP quoted this test result as  "weak positive"-- but she is not a GI doc or celiac expert by any means. She said I need to followup with my GI doc.

Not looking for opinions as to whether or not I'm celiac, because that is a whole long story, and I'm not wiling to try another gluten challenge. I was just wondering if anyone knows how relevant this particular test is (TTG-IGG) for a person who is already strictly avoiding gluten? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Yes, it is very relevant for people who are already avoiding gluten.  

Ttg Igg is a reliable test for Celiac.  You should follow up with a GI doctor as your personal physician suggested.  An endoscopy with the GI doctor can give insight into what's going on.  

Also request testing for vitamin and mineral deficiencies.  

Keep us posted on your progress!

Hope this helps!

EF-ATL Apprentice
On 10/22/2020 at 2:31 AM, knitty kitty said:

Yes, it is very relevant for people who are already avoiding gluten.  

Ttg Igg is a reliable test for Celiac.  You should follow up with a GI doctor as your personal physician suggested.  An endoscopy with the GI doctor can give insight into what's going on.  

Also request testing for vitamin and mineral deficiencies.  

Keep us posted on your progress!

Hope this helps!

Thank you @knitty kitty! My GI doc agrees with you, and I am getting endoscopy on Thursday. Will keep you posted.

knitty kitty Grand Master

Thank you!

Do keep us updated on the results!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,495
    • Most Online (within 30 mins)
      7,748

    AndreasRap
    Newest Member
    AndreasRap
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JA917
      I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
    • knitty kitty
      Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies.  Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy.  You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.   
    • cristiana
      Hello all I am taking some time out from work today to make my annual Christmas cake along the lines of a tried and tested English recipe which means a fruit cake, with marzipan  and icing.   As usual, I've left it too late - we're meant to bake these things some time  in advance to improve the flavour.    I never remember.  But it never seems to matter! I thought I'd share it in case any UK coeliacs still haven't made theirs and don't have a recipe, or any of my friends across the Pond want to try making one.  Do you make iced fruit cakes like this in the US for Christmas? - I have no idea! I adapt it slightly as instead of fondant icing I make Royal Icing which sets hard and you can create exciting snow scenes with it if you can find any tiny model houses, churches and trees to put on it!  (my Mum used to do this).   https://www.coeliac.org.uk/information-and-support/your-gluten-free-hub/home-of-gluten-free-recipes/1511804/ With thanks to the charity Coeliac Uk for this recipe. Cristiana  
    • trents
      Welcome to the forum, @Art Maltman! Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that has celiac disease. So, I think this would be an appropriate request to bring to your physician. Here is an article outlining the various serum antibody tests that can be ordered when checking for celiac disease:   The physician may not be open to ordering a full panel but push for at least these two: total IGA and tTG-IGA. By the way, absence of gut pain is very common in the celiac population. We call them "silent" celiacs as they have no or very minor symptoms. There are over 200 symptoms and spinoff health issues that have become associated with celiac disease and the range of symptoms and effects produced by the disease in different individuals various tremendously. 
    • Art Maltman
×
×
  • Create New...