Excessive Bloating 14 months Later

[mikemcm22]

Hello all, 

So I've been 110% gluten free for a full year (some mistakes first two months) and not much has changed for me. I just has another endoscopy which confirmed that I am basically fully healed... but I still have the same symptoms as a year ago. These are mostly bloating, fatigue, and brain fog. I also have really crackly joints and excessive sports injuries (went from college runner to barely exercising as I'll end up making my injuries worse). The bloating is way worse when I eat too many carbohydrates, that usually ranges from mild to extreme. Some days I have to go lay down. Everything seems to be getting worse lately and I see no help coming from my current doctors. I also have this numb pain/rock feeling/tingling in the lower left part of my abdomen that comes and goes. I am positive it is not gluten exposure. 

I am a 26 yo male. I should note that I had a positive breathe test two years ago but all Small intestinal bacterial overgrowth (SIBO) treatments have not worked. Candida treatment did not work. FODMAP diet showed I am sensitive to fructose and I generally can't handlea carbohydrates very well. (can't eat most fruits). I am finishing up the Autoimmune protocol diet (AIP) where I've discovered a handful of foods to avoid but they don't affect the bloating. I've done everything by the book and more. The only thing I have going for me is that my gastro. said that you should have seen something over the past year and acknowledges I definitely have another issue. 

Anyone know why I have this extreme bloating? It has made the last year of my life almost impossible and I just barely get by most days even though I am "healed" in terms of testing.

[cristiana]

Hi Mike

I suffer from bloating, sometimes upper abdomen, other times lower abdomen so I do sympathaise.  However, at the moment my bloating is so extreme that I can feel the gas moving around day and night!  I'm now getting sacroiliac pain and brain fog, all the things I had for a long while before and after diagnosis.

Couple of questions:

Are you consuming pure oats (the variety produced in a gluten free facility)? 

Other question: having you been taking any ppis (such as omeprazole) or gaviscon for hearburn etc? 

Reason I ask, is I think my latest run-in with bloating is  to do with having had to take a few days of omeprazole/nexium/gaviscon after eating rich food around the time of my birthday - always causes bloating - followed by inadvertently eating a loaf made with pure oats which have caused me problems in the past. .

My plan of action is to try peppermint tea and getting more exercise, loose belts and taking gluten free probiotics.  It has worked in the past, and I hope it will help.  Iron supplements have also caused bloating in the past - are you taking any?

My GP who has done some tests to rule out other things, including female issues, thinks that a small umbilical hernia may be adding to my discomfort.  

Maybe some of this might help.

Cristiana

 

 

[mikemcm22]

16 minutes ago, cristiana said:

Hi Mike

I suffer from bloating, sometimes upper abdomen, other times lower abdomen so I do sympathaise.  However, at the moment my bloating is so extreme that I can feel the gas moving around day and night!  I'm now getting sacroiliac pain and brain fog, all the things I had for a long while before and after diagnosis.

Couple of questions:

Are you consuming pure oats (the variety produced in a gluten free facility)? 

Other question: having you been taking any ppis (such as omeprazole) or gaviscon for hearburn etc? 

Reason I ask, is I think my latest run-in with bloating is  to do with having had to take a few days of omeprazole/nexium/gaviscon after eating rich food around the time of my birthday - always causes bloating - followed by inadvertently eating a loaf made with pure oats which have caused me problems in the past. .

My plan of action is to try peppermint tea and getting more exercise, loose belts and taking gluten free probiotics.  It has worked in the past, and I hope it will help.  Iron supplements have also caused bloating in the past - are you taking any?

My GP who has done some tests to rule out other things, including female issues, thinks that a small umbilical hernia may be adding to my discomfort.  

Maybe some of this might help.

Cristiana

 

 

Hey, 

I get lower back pain too but I've always had that. No oats, going to wait to try those. Stopped PPI a few months back, no medications besides some supplements. I take a multivitamin with iron but I've been taking that for a year so I don't think that is making a big difference. The brain fog is the worst.... I space out so much at work. 

Last time I tried probiotics my insides went crazy and I had to take time off from work, they were powerful ones though. I have not tried anything since. 

I'm at a loss for the reason but feel free to follow up if you get things better since it sounds like we are in the same boat. I'll do the same. 

Thanks!

[cristiana]

1 hour ago, mikemcm22 said:

Hey, 

I get lower back pain too but I've always had that. No oats, going to wait to try those. Stopped PPI a few months back, no medications besides some supplements. I take a multivitamin with iron but I've been taking that for a year so I don't think that is making a big difference. The brain fog is the worst.... I space out so much at work. 

Last time I tried probiotics my insides went crazy and I had to take time off from work, they were powerful ones though. I have not tried anything since. 

I'm at a loss for the reason but feel free to follow up if you get things better since it sounds like we are in the same boat. I'll do the same. 

Thanks!

Yes, it's always heartening to meet a fellow sufferer, but a shame for the fellow sufferer all the same!

I would give peppermint tea a go, though, if you haven't.  

Yes, and probiotics aren't always a silver bullet - I had problems with one brand and stopped using them for a while.

Hopefully we will both find answers soon.