Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mid-diagnosis and waiting for answers..


Cath T

Recommended Posts

Cath T Newbie

Hi guys!

 

I’ve recently had blood tests to check for celiac (amongst other things) and am (im)patiently waiting for the results. 

 

I’ve been doing a lot of reading on celiac lately and so many of the symptoms fit - nausea and upset stomach, cramps, indigestion, very noisy stomach, exhaustion, brain fog, various joint and muscle aches and pains, depression and anxiety, weight loss (about 18lbs) and loss of appetite... except sometimes when I’m starving hungry five minutes after eating?! After 3 weeks of keeping a food diary the link between feeling those things and eating gluten seems pretty solid.


Over the last few weeks though, I feel like I’ve just got steadily worse to the point that even when I eat a completely gluten free meal my stomach is pretty unhappy, although the only symptoms I get are nausea and a bit of pain and churning. I also think I’m getting more sensitive to much smaller amounts of gluten. Oats have not bothered me in the past, but this morning I had porridge and it’s made me feel awful. I know that oats themselves are gluten free but can easily be contaminated with other grains, so I’m guessing that’s my problem! 

 

Has anyone else experienced either of those things? I’ve been ill for quite a while now, getting steadily worse over the last few months, but now I feel like the link between gluten and the symptoms is becoming less clear! I’m getting worried that my tests are going to come back negative (though that sounds a bit odd - I would be very happy to get to keep eating all my favourite foods at least!) and I’ll be no closer to finding out what’s making me feel so terrible. 

 

Catherine 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, Catherine!

Not only can oats be contaminated with gluten-containing grains, about 10% of celiacs react to oat protein the same way they do wheat, barley and rye.

Also, it is common for celiacs to develop allergies/intolerances to non-gluten foods. Celiac disease creates "leaky gut" syndrome that allows larger than normal protein fractions from the food we eat to enter the blood stream where they are detected as invaders which then causes the body to generate antibodies to them.

Keep us posted on your test results.

Cath T Newbie

I didn’t realise that about oats! Thanks, that’s useful info ☺️

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,375
    • Most Online (within 30 mins)
      7,748

    KEALBO
    Newest Member
    KEALBO
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Katerific
      I was diagnosed with microscopic colitis and celiac a couple of years ago.  The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off.    After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission.  Since I am also diabetic, I was started on metformin and Jardiance.  Metformin by itself helped moderately.  I added Jardiance and I was much better.  I stopped the metformin and relapsed and when I added it back, I regained remission.  I think metformin and Jardiance helped my colitis because they reduce inflammation in the gut.  Metformin is known to favorably modulate the gut microbiome and reduce inflammatory cytokines.  Similarly, emerging evidence supports the anti-inflammatory properties of SGLT2 inhibitors like Jardiance.  Once I was on both, the diarrhea stopped completely, even though nothing else ever worked long-term.  There is a Facebook group that can be very informative and helpful.  Look for "Microscopic Colitis and Lymphocytic Colitis Support Group.  You will find that members of the Facebook group identify other pathways to remission of microscopic colitis.
    • knitty kitty
      Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers.  I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6.  Together these vitamins have an analgesic effect.  I think it works better than OTC pain relievers.   I also like  "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets" .   It's all three vitamins together in one pill.  Works wonderfully!
    • knitty kitty
      It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels.   The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies.   Thiamine Vitamin B1 helps the thyroid function.  I like Benfotiamine and TTFD Thiamax.  
    • Mettedkny
      @Scott Adams Xiromed is one of the generic manufacturers of Progesterone pills.
    • Scott Adams
      The topic has come up in the forum a lot: https://www.celiac.com/search/?q=lymphocytic colitis&quick=1&type=forums_topic and here are discussions with "colitis": https://www.celiac.com/search/?&q=colitis&type=forums_topic&quick=1&search_and_or=and&sortby=relevancy
×
×
  • Create New...