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Recurrent pregnancy loss

LCArseneault

By LCArseneault
in Related Issues & Disorders

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LCArseneault Rookie
LCArseneault
Posted

Has anyone diagnosed with celiac found as part of RPL workup gone gluten free and had successful pregnancies? 

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Darcy Martinez Apprentice
Darcy Martinez
Posted

Some have had success preventing miscarriages by taking progesterone. 

LCArseneault Rookie
LCArseneault
Posted
  • Author
36 minutes ago, Darcy Martinez said:

Some have had success preventing miscarriages by taking progesterone. 

Was on progesterone for my last loss and still miscarried. My entire recurrent pregnancy loss workup has come back normal except for my celiac panel was positive, and from what I’m reading untreated celiac can cause both infertility and recurrent pregnancy loss. My doctor is quite young and has never had a patient with recurrent pregnancy loss before let alone with celiac, so hadn’t come across the situation and couldn’t comment. 

knitty kitty Grand Master
knitty kitty
Posted

@LCArseneault, welcome to the forum!

I understand what you're going through.  I've lost babies, too.

Be aware that Celiac Disease causes malabsorption which results in malnutrition.  Being low or deficient in certain vitamins and minerals can affect your fertility and successful pregnancies.

Here are some articles that you might find helpful...

"The Role of Vitamin D in Fertility and during Pregnancy and Lactation: A Review of Clinical Data"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6210343/

And...

"Association of vitamin D intake and serum levels with fertility: Results from the Lifestyle and Fertility Study"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5545066/

And...

"Effects of Mild and Severe Vitamin B1Deficiencies on the Meiotic Maturation of Mice Oocytes"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5395269/

And...

Thiamine during pregnancy...

https://www.hormonesmatter.com/tag/vitamin-b1-deficiency/

Your blood test for Celiac was positive.  Damage to the small intestine can be microscopic and patchy in the early stages.  A biopsy would be able to find this and would give you a baseline for future reference.  But it's understandable not wanting to wait for an endoscopy in the current times.  Starting a gluten free diet now and going back on gluten a few months down the road may provoke more severe symptoms.  Some people choose to do a genetic test to find out if they have some of the most common genes for Celiac.  Not all Celiac genes are known, but.... I personally don't think continuing to hurt oneself with gluten is beneficial. Most Celiacs take eighteen months to two years to heal.   A positive blood test for gluten antibodies, a positive genetic test, and improvement on the gluten free diet might be enough for you. 

I find Dr. Sarah Ballantyne's book "The Paleo Approach" very helpful.  She has Celiac, as does her children.  This diet has been scientifically proven to help with healing.  

Discuss with your doctor the benefits of supplementing with a B Complex, Vitamin D and additional thiamine.  

Hope this helps!  Keep us posted on your progress!  

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
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      By marion wheaton · Posted

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      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
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      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
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