My Imaware Results and Questions

[WhatsTheDealiac]

I have my celiac panel testing results. I tried to attach them, but the picture was too big, so I will post numbers.

tTg-IgA 1.7 U/mL

tTg-IgG 3.3 U/mL

DGP-IgA 4.1 U/mL

DGP-IgG 6 U/mL

I want to preface this post by mentioning that my sister got a food sensitivity test by EverlyWell, where they rate you on a 1,2, or 3 scale for severity of sensitivity to each food they test for. She received a 2 for gluten.

It appears that I don’t have Celiac Disease?

I really thought this would come back as probable for Celiac Disease, with all the problems I have had, but alas, it did not. I did not restrict my gluten intake, whatsoever, before testing.

How many people get dermatitis herpetiformus without Celiac Disease? Can gluten sensitivity cause that? What about the mental manifestations? Can that be caused by gluten sensitivity?

[WhatsTheDealiac]

If this thread is needlessly redundant, feel free to delete this thread. I just wanted people to see the results for lurkers that was a point of reference.

tTg-IgA 1.7 U/mL Above 5.4 is abnormal

tTg-IgG 3.3 U/mL Above 6.4 is abnormal

DGP-IgA 4.1 U/mL Above 14.7 is abnormal

DGP-IgG 6 U/mL Above 10.5 is abnormal

I don’t understand how the references could be different from different companies? I would think that if it was above a certain amount, you would have Celiac, no matter where it was done?

I haven’t had a biopsy done, but the rash is bumpy, itchy, and looks like some of the pictures I have found for DH. It happened in the same time frame that I got a bumpy rash on the undersides of my arms, and also getting loose stools that is causing the worst anal itch in the world, accompanied by anal bleeding

[Scott Adams]

Although your blood test results indicate that you may not have celiac disease, some of them are elevated, which can still indicate non-celiac gluten sensitivity, for which there are not current tests, yet ~10x more people have than do celiac disease. Were you eating at least 2 slices worth of wheat bread per day for 6-8 weeks before the blood test? If not, your results could be false negative.

If possible it would be a good idea for you to see a dermatologist and get a DH skin biopsy next to a blister to see if it is DH. 

Have you ever tried a gluten-free diet? After all testing for celiac disease is completed you may want to try it for a few months to see if it helps with your symptoms.