Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recurring Strep Throat and Other Symptoms


Mrs.Driver

Recommended Posts

Mrs.Driver Newbie

Hello everyone, I am new here but I am so very happy that I come across this on your Google search so here’s a little bit of our backstory. My son is 14 years old and last year he got sick and of course I took him to the doctor doctor did a rapid strep test, and it came back that he was positive for strep and after this, he continued to get strep on a regular basis missing up to two weeks of school each time and this was just throughout the school year in which our doctor told us, the strep test were not very reliable that they often cause a false positive. She did a few small tests on him. I can’t remember exactly what, but they all come back good well about January of this year he started getting bodyaches he said that the body aches feel the flu body aches I’m sure most of you have experience those horrible bodyaches that come with the flu anyway so he has had these bodyaches since probably at least January and they come and they go but he almost has them all the time they might be mild and other days he’s in bed for a couple days with these bodyaches feeling like he has the flu, so I finally switch doctors and the doctor we are seeing now ran a whole slew of tests on him everything came back positive except for he was low in vitamin D, we found out he had a gluten and a dairy allergy and his white blood cell count was super low. He’s been on vitamin D four I think five weeks now, and he actually started feeling a little better as far as the bodyaches go for like a week but then suddenly over the weekend he started having these horrible bodyaches again that’s not the only thing that happens. I mean with the bodyaches he usually has like a headache and stomach aches really bad which obviously I know that’s probably from the gluten and dairy allergy now that we know, but if these bodyaches are really, really worrying me I don’t know, if that’s normal when you have low white blood count or low vitamin D, but I feel like after five weeks of being on vitamin D they should’ve at least either subsided altogether or I would think they would at least be mild, but this is affecting his mental state as far as he gets irritable he gets emotional it has been a roller coaster I just want to know what’s wrong with my son, but no one is taking this seriously I feel like well. I can’t say that because the doctor that we are seeing now has done more for us than any other doctor but she tells me his white blood cell count is low and that that means he’s fighting something viral so I asked the nurse is there a way we can test to see what it is and the nurse tells me yes but then the doctor doesn’t want to test for it. She just wants to take the vitamin D and see him back in three months I think and that just seems like a really long time for him to be suffering like this it is affecting his school he was straight a student and now he has D’s and F’s because he can’t even concentrate in school. He feels so bad and I feel like a horrible mother even sending him to school, but I can’t get a doctors excuse every single time he has these symptoms and I know how school works if he doesn’t go to school and misses so many days then we’re gonna end up in court so I have no choice but to send him to school and then with the school sent him home I’m just so confused about this and I’m honestly tired of seeing my normally smart witty, vibrant, funny, jokester Son who loves to hunt fish and be outdoors at all times become a emotional sad roller coaster, who is in so much pain and who wants to do nothing besides lay in bed. This has affected him all the way around the board and there’s nothing I can do for him I feel helpless, so I’m just wondering has anyone else experienced this or experienced low blood count with a gluten or dairy allergy if he goes on a gluten dairy free diet will his white was account improve or I’m just looking for any insight, and if you can give, and I thank you guys so much in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tracy414 Explorer
48 minutes ago, Mrs.Driver said:

Hello everyone, I am new here but I am so very happy that I come across this on your Google search so here’s a little bit of our backstory. My son is 14 years old and last year he got sick and of course I took him to the doctor doctor did a rapid strep test, and it came back that he was positive for strep and after this, he continued to get strep on a regular basis missing up to two weeks of school each time and this was just throughout the school year in which our doctor told us, the strep test were not very reliable that they often cause a false positive. She did a few small tests on him. I can’t remember exactly what, but they all come back good well about January of this year he started getting bodyaches he said that the body aches feel the flu body aches I’m sure most of you have experience those horrible bodyaches that come with the flu anyway so he has had these bodyaches since probably at least January and they come and they go but he almost has them all the time they might be mild and other days he’s in bed for a couple days with these bodyaches feeling like he has the flu, so I finally switch doctors and the doctor we are seeing now ran a whole slew of tests on him everything came back positive except for he was low in vitamin D, we found out he had a gluten and a dairy allergy and his white blood cell count was super low. He’s been on vitamin D four I think five weeks now, and he actually started feeling a little better as far as the bodyaches go for like a week but then suddenly over the weekend he started having these horrible bodyaches again that’s not the only thing that happens. I mean with the bodyaches he usually has like a headache and stomach aches really bad which obviously I know that’s probably from the gluten and dairy allergy now that we know, but if these bodyaches are really, really worrying me I don’t know, if that’s normal when you have low white blood count or low vitamin D, but I feel like after five weeks of being on vitamin D they should’ve at least either subsided altogether or I would think they would at least be mild, but this is affecting his mental state as far as he gets irritable he gets emotional it has been a roller coaster I just want to know what’s wrong with my son, but no one is taking this seriously I feel like well. I can’t say that because the doctor that we are seeing now has done more for us than any other doctor but she tells me his white blood cell count is low and that that means he’s fighting something viral so I asked the nurse is there a way we can test to see what it is and the nurse tells me yes but then the doctor doesn’t want to test for it. She just wants to take the vitamin D and see him back in three months I think and that just seems like a really long time for him to be suffering like this it is affecting his school he was straight a student and now he has D’s and F’s because he can’t even concentrate in school. He feels so bad and I feel like a horrible mother even sending him to school, but I can’t get a doctors excuse every single time he has these symptoms and I know how school works if he doesn’t go to school and misses so many days then we’re gonna end up in court so I have no choice but to send him to school and then with the school sent him home I’m just so confused about this and I’m honestly tired of seeing my normally smart witty, vibrant, funny, jokester Son who loves to hunt fish and be outdoors at all times become a emotional sad roller coaster, who is in so much pain and who wants to do nothing besides lay in bed. This has affected him all the way around the board and there’s nothing I can do for him I feel helpless, so I’m just wondering has anyone else experienced this or experienced low blood count with a gluten or dairy allergy if he goes on a gluten dairy free diet will his white was account improve or I’m just looking for any insight, and if you can give, and I thank you guys so much in advance!

Are all of his other blood counts normal? He’s not anemic and platelets are normal? Would you be able to provide his results with the lab reference ranges? 

knitty kitty Grand Master

It's rare to have a deficiency in just one vitamin or mineral.  A good B Complex, Vitamin C, and magnesium and extra thiamine in the form of benfotiamine would be beneficial along with the Vitamin D.  

Thiamine has anti-viral properties!  Thiamine is used to fight Covid.  Recurring infections are indicative of Thiamine deficiency.  Benfotiamine is a form that can get inside cells easily.  The mitochondria need extra thiamine and thiamine derived enzymes to fight infections plus do all their regular stuff.  

Our bodies cannot make the Eight Essential B vitamins, so we must get them from foods and supplements.  We cannot store B vitamins very long, so we can become depleted over a period of months to weeks.  We can become depleted of Thiamine in nine days.  Early Thiamine deficiency symptoms include feeling like you have the flu, fatigue, no energy.  Beriberi translates to "I can't, I can't".  Gastrointestinal beriberi causes stomach aches.  Thiamine is essential for energy production.  Thiamine needs magnesium to work properly.  Magnesium deficiency symptoms include muscle aches.  Emotional lability, irritability, inability to concentrate and focus and think are all symptoms of Thiamine deficiency called Wernicke's Encephalopathy.  Symptoms may wax and wane mysteriously depending on how much Thiamine is absorbed from the diet.  

I have experienced thiamine deficiency myself.  Most doctors don't recognize vitamin deficiency symptoms anymore.  

The World Health Organization says a diagnosis of thiamine deficiency can be made if high dose thiamine hydrochloride (500-2000mg/day) is given and improvement is seen.  Some see improvements within hours, like me.  Other forms of Thiamine like Benfotiamine and Thiamax, or Allithiamine can be used (lower doses can be used because these forms enter cells easily).

The B vitamins are safe, nontoxic, have no upper limit, are water soluble so excess is excreted in urine, and available without a prescription.  

Please discuss with your doctor (or a new one) the benefits of supplementing with high dose Thiamine to reverse your son's symptoms quickly.  Thiamine can be given intravenously by medical professionals.  Oral Thiamine supplementation works just as well.  High dose Thiamine is a cheap, harmless remedy to try.  If no improvement is seen, no harm is done.  However, delayed correction of Thiamine deficiency can cause permanent damage.  I wouldn't let my son suffer for three more months.  Read my blog for my story.

  • 1 month later...
Mrs.Driver Newbie
On 11/3/2022 at 12:27 PM, Tracy414 said:

Are all of his other blood counts normal? He’s not anemic and platelets are normal? Would you be able to provide his results with the lab reference ranges? 

Yes everything else was normal only WBC & Vitamin D

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.