Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fructose intolerance now???

Lboisvert

By Lboisvert
in Related Issues & Disorders

 Share

Recommended Posts

Lboisvert Rookie
Lboisvert
Posted

I was diagnosed with Celiac Disease this past January and have been gluten free since the day I found out.  Fast forward a few months and I have symptoms like abdominal distension, pain in stomach and back.   My GI did a couple breath tests and it appears now I have a fructose intolerance and I am having trouble processing this idea.  Going gluten free was tough but I did it and now I feel like why do I have to give up more foods.  I barely eat fructose anyways unless it is hidden in the ingredients, was kind of hoping I had SIBO so at least antibiotics would get this under control but nope.  I find it hard to believe that eating fruit can cause me to look 6 months pregnant and to be in so much pain.

Has anyone else had this issue????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knitty kitty Grand Master
knitty kitty
Posted

Yes, I have.  I followed the Autoimmune Protocol Diet (AIP diet) and noticed improvement within a few weeks.  

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

Low fructose fruits or fruits with an equal ratio of glucose to fructose are allowed, like dates.

I also take Benfotiamine, a form of thiamine that can easily enter cells, which is needed to turn fructose into energy and heal the gastrointestinal tract, and a B Complex.

Changing what you eat will regulate which bacteria grow in your microbiome.  Antibacterial drugs will kill off the good as well as the bad bacteria.  Change your diet, remove fructose, and the fructose loving bacteria will starve and die off, leaving the good bacteria room to proliferate.  

Thiamine helps keep bad bacteria from overgrowth into the small intestine.  High fructose corn syrup has been found to form a substrate in the lower small intestine where bacteria can gain a foothold and overgrow into the small intestine.  

Hope this helps!

Scott Adams Grand Master
Scott Adams
Posted

Is there any chance gluten has been sneaking into your diet? The would also explain the sudden change. If you eat at restaurants it is likely you could be getting regular cross-contamination.

  • 2 weeks later...
Lboisvert Rookie
Lboisvert
Posted
  • Author
On 11/5/2022 at 2:37 PM, Scott Adams said:

Is there any chance gluten has been sneaking into your diet? The would also explain the sudden change. If you eat at restaurants it is likely you could be getting regular cross-contamination.

I’ve had a breath test for fructose so unfortunately it is that. 

Scott Adams Grand Master
Scott Adams
Posted

We've done some articles on the low FODMAP diet which may be of interest:

https://www.celiac.com/search/?&q=FODMAP&type=cms_records2&search_and_or=and&search_in=titles 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,723
    • Most Online (within 30 mins)
      7,748
    Nessa6
    Newest Member
    Nessa6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free stool softener needed for after surgery

      By Scott Adams · Posted

      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      New to gluten-free

      By Scott Adams · Posted

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      New to gluten-free

      By trents · Posted

      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      New to gluten-free

      By QueenBorg · Posted

      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      Refractory celiac disease

      By knitty kitty · Posted

      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...