Not sure if I’m coeliac

[Laurak11]

Please help

im 38 and never had any known symptoms of this. For the past month I’ve had a number of digestive issues starting with stomach cramps for a few days then found blood in stool. Currently waiting for a flexi-sigmoidoscopy. Had various blood tests and the only thing that came up was coeliac although she said the marker was not that high. Does this mean I must have it? I’m not sure how these tests work.  I’ve been having the worst pain in my stomach but particularly my left side and into my back also nausea and a feeling that something is stuck in my throat. I’ve also had tingling in my face and hand.  I’m not rushing to toilet and my stool sample has come back normal. The doc has referred me to the gastro team and for a ct scan. I’m so frightened it could be something awful. Just wondered if anyone else with celiac disease has experienced any of these symptoms

[plumbago]

Hello Laura,

So sorry to hear about this. There's really no way for us to zone in on what your symptoms add up to with exactitude, but we can endeavor to ask questions and support you in other ways.

I myself have recently experienced the feeling of having something stuck either in my throat or mid-chest/sternum (basically my "craw"). I am fairly sure it was a case of GERD and slowly it's gone away, kind of on its own.

Otherwise, you said at first there was blood in your stool, but then further down you say that they say your stool sample came back normal. I'm not sure what they were checking for in that "stool sample." Often, passing stool, particularly large ones, can cause the lining of the anus to tear a bit and then bleed. So you will want to make sure that an anal tear is not what's contributing to the blood in the stool. I mean, a gastro- or proctologist would.

7 minutes ago, Laurak11 said:

Had various blood tests and the only thing that came up was coeliac although she said the marker was not that high.

Even if it is only slightly out of range, one positive test in the Celiac panel is indicative of celiac disease. I got tested twice to make sure I had it without a doubt before I gave up pizza, fresh-baked bread and beer for life! All tests on both panels for me were strongly positive, but again, strong or weak, it doesn't matter. It takes only one. (If you search the forum on this site, you can find in-depth information on the most common and best Celiac tests.)

The finger and mouth tingling could be due to a mineral (possibly vitamin) deficiency, so make sure your GP is running a complete metabolic panel to check. If you do have Celiac, you may be deficient in a mineral.

Others can weigh in, but if you could post (type only, don't show any personal information!) the results of your test(s) along with the ranges, that may help.

Plumbago

[trents]

How often do you get blood in your stool and is it bright red or dark?