Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions about Test Results


KGB1819

Recommended Posts

Daisy23 Rookie

Hi! @KGB1819
I know this thread is a few months old, did your face clear? I’m currently going through the same thing, lymphocytes found on biopsy, was supposed to get tested this week via blood but came down with the flu so now it’s next week. My face is really bothering me. The rest of my skin does too but this is visible to everyone and I hate it. not to mention scratching them open and it looks worse. :(  I plan to do gluten free regardless after testing but I know it can take a while for the skin to heal and I don’t want to get discouraged that it’s not helping if it takes a while to clear. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KGB1819 Rookie

@Daisy23 yes! Don’t give up! I know a lot of people will say celiacs won’t effect your skin/face. But don’t give up hope. Especially if lymphocytes were found in your biopsy. I can say since being gluten free for a couple of months now, that it has definitely made an impact on the rashes on my face. So much so, that if I try to eat out and I think I got it 100 percent gluten free, the next day my face shows me I didn’t. Even my family has been able to tell the difference. I switched my primary care doctor, and when I saw him last month, and he found out I had celiacs, the first thing he actually asked me was if I struggled with skin rashes on my face. That was before I even told him I struggled with that before. So it does happen. I go back to my gastro at the end of this month for him to retest my tTg, to see if gluten-free has been helping. Feel better soon! (We also were hit with the flu this month. It’s no fun)

Daisy23 Rookie
1 minute ago, KGB1819 said:

@Daisy23 yes! Don’t give up! I know a lot of people will say celiacs won’t effect your skin/face. But don’t give up hope. Especially if lymphocytes were found in your biopsy. I can say since being gluten free for a couple of months now, that it has definitely made an impact on the rashes on my face. So much so, that if I try to eat out and I think I got it 100 percent gluten free, the next day my face shows me I didn’t. Even my family has been able to tell the difference. I switched my primary care doctor, and when I saw him last month, and he found out I had celiacs, the first thing he actually asked me was if I struggled with skin rashes on my face. That was before I even told him I struggled with that before. So it does happen. I go back to my gastro at the end of this month for him to retest my tTg, to see if gluten-free has been helping. Feel better soon! (We also were hit with the flu this month. It’s no fun)

You’ve given me a lot of hope! Thank you so much. I’ve been told my face is probably this, that or the other. Even tho the rash is in other spots they said they couldn’t be from the same thing even tho they look the same. I lost hope in dermatologists. I likely won’t even ask for the biopsy just going straight to gluten free. So glad you’re doing better! If you’re up to it or remember, update your new levels! Happy healing!! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...