I so appreciate you talking about this. Honestly I’m so sick the most part of the last 15 years, I’m going to cross reference your list with my own. Celiac since 24 yrs old diagnosed in 1997. I just saw a specific celiac GI specialist at the celiac disease center in Chicago and when I told her all the food reactions I was having she said she believed me but there was no clinical evidence to support my reactions(I felt so unseen, she recommended I see a gut psychologist, what the heck). I react with severe body aches to bloating and dizziness to exhaustion:  most lectins except berries and low lectin veg, no eggs, no nightshade veg, no dairy, all carbohydrates including no gluten-free carbs or grains, though a little coconut flour seems ok now, need to test other non grains, certain alcohols that say gluten-free but looking into their process further I get horribly sick if distilled through a gluten grain example Costco vodka….. Because I had an upper and lower GI in 1997(I was 24 and 84#s) and my GI doc came back with celiac disease, this new doc suggested I may not be a celiac. Is running some blood test. Omg. I can’t even. I’m so beyond frustrated. 

Wishing you lots of luck--let us know how it turns out!

Thank you both for your input! trents: yes I completely agree, it's simple anatomy. The walk-in doctor I saw even said to me, "you cannot get exposure or get sick if it only got in your respiratory system" to which I replied, "If I inhaled it, it's in the mucous I swallow that leads to my gut." I was honestly baffled I had to explain that to her. Thanks for your comments! Scott Adams: Thanks for your advice, yes I agree I think that's ultimately what I have to do especially while times are getting tougher in this current economy! Hopefully I find something new and equitable or better, in a quick manner! Please send prayers and best wishes for me to find a new job quickly, I wore the N95 masks today and it seems like I'm gonna be okay but I literally have to hazmat wash my clothes and myself when I get home. I think my current exposure will have time to recover while I'm wearing the masks at work. Thank you all again!

Parent-to-parent, I hear your exhaustion and worry loud and clear – what you’re describing goes far beyond typical toddler troubles. Your daughter’s screaming night pain, terrible bloating, stalled growth, and constant infections are textbook red flags for celiac disease or another serious gluten-related condition. While her blood test came back negative, there are critical reasons not to rule it out yet. First, celiac tests are notoriously unreliable in kids under 3 – their tiny immune systems often don’t produce enough antibodies to register on standard blood work, especially if she wasn’t eating consistent gluten beforehand (which you mentioned was a struggle). Her iron deficiency alone is a glaring clue, as it’s one of the most common signs of undiagnosed celiac in little ones. The fact that she’s already dairy/soy-free yet still suffering suggests something bigger is at play. It could still be celiac (a pediatric GI should consider an endoscopy with biopsies, the gold standard for diagnosis), or possibly non-celiac gluten sensitivity (NCGS) – which doesn’t show up on tests but can cause identical agony. Her recurring mouth ulcers and infections also hint at the immune dysfunction seen in celiac. Until you see the specialist, I’d quietly start a gluten-free trial (after documenting her current symptoms carefully with photos/videos of the bloating and pain episodes). If you see improvement in 3-4 weeks, that’s powerful evidence to bring to the doctors. You’re not being dramatic – you’re being the exact advocate your daughter needs. If the pediatrician brushes you off, look them in the eye and say: “What else could explain ALL these symptoms together? If it’s not celiac, what’s our next step to stop her suffering?” Keep pushing – moms’ instincts are rarely wrong about this stuff. For now, focus on small wins: snap daily pics of her belly to show the distension, ask for a fecal calprotectin test (checks gut inflammation), and know this internet stranger is rooting for you both. She’s lucky to have you fighting for her.

So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets  6 days before of  senna for 5 day before my plenvu prep which I start tomorrow yet it says if ibd colitis crone's or others are present don't take the senna but I don't know if I have these yet my brother tho has the same symptoms has just be diagnosed with colitis and didn't take the senna can anyone shed light on this for me  has I  start the prep tomorrow I already have very loose bowels seems a lot to go threw for 6 days ? I'm new to all this do I'm just a little confused here ant help round be appriciated 🙏 also I'm so anxious wat to expect with the colonoscopy has anyone got any advise thanks in advance 🤗