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Celiac Symptoms Changing

Courtney09

By Courtney09
in Dermatitis Herpetiformis

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Courtney09 Apprentice
Courtney09
Posted

Hello ~ I have had celiac disease for 20 years and on a gluten free diet for same.  Recently I feel like my symptoms have changed when I accidentally get glutened.  I will always get the celiac rash (dermatitis herpetiformis), but I don't seem to have any more digestive issues like I had before.  I would get stomach pain, back pain, diarrhea, etc.  Has this happened to anyone else?  Could it be that it's just a tiny amount of cross contamination that flares up dermatitis herpetiformis but not enough to affect the stomach/intestines?

Also, one last question for those with dermatitis herpetiformis.  Have you ever had it where your entire back breaks out in a red rash that looks exactly like a sunburn and burns?  It's different than my dermatitis herpetiformis because it doesn't have blisters.  I'm just trying to determine if this is related to celiac, dermatitis herpetiformis or something else.

Thanks so much!

Courtney

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Hopeful1950 Explorer
Hopeful1950
Posted

Hi, my dermatitis herpetiformis shows up with the tiniest accidental gluten exposure. Tummy stuff not so much after over 10 years strictly gluten-free.

my dermatitis herpetiformis can also flare from trauma to my skin awakening antibodies that have been lying dormant. A paper cut, a bruise, scratchy clothes, sun exposure…

apparently after exposure all antibodies in the skin don’t blister right away and can remain dormant for up to ten years. 

Courtney09 Apprentice
Courtney09
Posted
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28 minutes ago, Hopeful1950 said:

Hi, my dermatitis herpetiformis shows up with the tiniest accidental gluten exposure. Tummy stuff not so much after over 10 years strictly gluten-free.

my dermatitis herpetiformis can also flare from trauma to my skin awakening antibodies that have been lying dormant. A paper cut, a bruise, scratchy clothes, sun exposure…

apparently after exposure all antibodies in the skin don’t blister right away and can remain dormant for up to ten years. 

So good to know, thank you!  Started very minor tummy issues today which is day 3 of accidental glutening, but never as bad as way back when!

Funny you should mention sun exposure.  Last spring after spending each day in the sun I would break out in itchy rashes similar to dermatitis herpetiformis.  Dermatologist thought Lupus for sure ... but my tests were negative.  Maybe it's my dermatitis herpetiformis!

Thanks for the info!

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