Eosinophilic Esophagitis, non-Celiac Gluten Sensitivity

[Hiawatha]

Hello, I'm currently experiencing gas/bloating symptoms and I'm wondering if anyone has suggestions on this.

I've had eosinophilic esophagitis (EoE) since I was a teenager. EoE symptoms include throat tightness when eating. About 15 years ago, an integrative doctor recommended I go gluten/dairy free. After starting the diet, my EoE symptoms improved about 85%. (I think some symptoms are still caused by environmental allergies.) After testing, the doctor said I don't have celiac but I have gluten sensitivity.

My EoE was managed very well for several years up until 3-4 weeks ago. I ate at a restaurant and had gluten free pancakes. That night, I got quite sick (diarrhea). I'm guessing it was the pancakes because nothing else changed in my diet. The diarrhea went away the next day but I experienced lingering gut issues (gas, stomach ache) for several weeks. Then, about 10 days after the pancakes, I was eating my regular diet and food got stuck in my throat (common symptom with EoE). I ended up going to the Emergency Room. After a few hours, the food passed and I went home. To me, all of this meant I had ingested gluten.

Today, I still feel like my stomach is unsettled. I have somewhat of a stomach ache and quite a bit of gas after eating. 

For the past week, I've been using a product called Gastro-Ease but I haven't felt any improvement yet. In fact, after last night's meal, gas discomfort increased quite a bit (I ate a meal that included quinoa, which is usually fine).

I don't know if it is normal for healing to take this long or if something else is going on. Any thoughts/recommendations on this?

[knitty kitty]

Hello, @Hiawatha,

This article explores how EOE may be connected to a thiamine insufficiency....

http://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/

[Hiawatha]

9 hours ago, knitty kitty said:

Hello, @Hiawatha,

This article explores how EOE may be connected to a thiamine insufficiency....

http://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/

Thank you for sharing this article! Interesting that I have a family history of alcoholism and a craving for sweets. I'm surprised more hasn't been written about the role of sugar with EoE.

I'm scheduled to see an integrative doctor in about six weeks. I will be sure to discuss this article with him.

[knitty kitty]

@Hiawatha,

My family is the same way...😼

Not much information available about sugar and EOE may be because there's a simple solution that doesn't require pharmaceuticals.