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Celiac Disease and Gilbert's Syndrome


LovintheGFlife

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LovintheGFlife Contributor

For many years the Bilirubin results in my annual blood work have been borderline or slightly high. They are typically in the range 1.2-1.7 mg/dL. Every time I discussed this with my physician, he claims it is "normal" for some individuals and attributed it to Gilbert's Syndrome, a benign condition. I was diagnosed with celiac disease (celiac disease) three years ago. I don't wish to share TMI or sound gross but another interesting point to note: my poop has been yellow or orange colored for many years, even before my diagnosis. It is seldom brown in color, unlike my other family members. I wonder if this could be related to celiac disease. Interested in hearing about the experiences of other members. Thank you.


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trents Grand Master

Welcome to the forum, @LovintheGFlife!

1. Are you consistent with eating gluten free?

2. Since being diagnosed with celiac disease, have you had any follow-up testing (blood antibody or biopsy) to check for the status in healing of the small bowel villous lining?

3. Are you still consuming dairy products?

4. What meds are you taking?

https://www.medicalnewstoday.com/articles/323147#stool-colors

 

LovintheGFlife Contributor

Welcome to the forum, @LovintheGFlife!

Thank you @trents. Please see my responses below.

1. Are you consistent with eating gluten free?

Yes, very consistent. I occasionally eat out but only at places that have a gluten-free menu. And I take Gliadin-X when eating out

2. Since being diagnosed with celiac disease, have you had any follow-up testing (blood antibody or biopsy) to check for the status in healing of the small bowel villous lining?

Yes, the antibody titer results kept falling and are now back in the normal range.

3. Are you still consuming dairy products?

Yes, I cannot resist butter/cheese products, yogurt and ice cream!

4. What meds are you taking?

None, other than multivitamins and Vitamin D.

https://www.medicalnewstoday.com/articles/323147#stool-colors

Thanks for sharing this article. It is very helpful.

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    • AnnaNZ
      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
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    • RMJ
      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods go on the upper shelves so crumbs with gluten can’t fall onto them. Good luck!
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