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When To Test Your Child?


sydneysmommy

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sydneysmommy Apprentice

I am almost 26 years old and was diagnosed with celiac disease 5 years ago.

I have Celiac Disease but am also sensitive to many other foods; mostly starches & creams & corn syrup etc. i am currently doing the SCD diet modified to include a minimal rice allowance. this works well for me.

i just had a baby in November and knowing how incredibly sensitive *I* am to foods/ingredients above and beyond gluten, I am worried about starting her on solids soon.

we just began rice cereal and she loooooves it.

she's in the 80th percentile for 4 mos old.

how young can you have babies/children tested?


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moonunit Apprentice

I've been wondering the same thing -- I've seen that you can't do blood tests for kids under age 2 but the Enterolab I think does stool tests for younger.

I don't want to put my kids through the incredible hassle of the gluten-free diet if I don't have to, but I don't want to wait until there's really horrible damage and THEN say "whoopsie" and put them on it too late.

Has anyone here had their kids under two tested, and if so, what reason did you have it done (symptoms, diagnosis in parent, etc.?)

happy4dolphins Enthusiast

HI,

My Joshua will be 2 on April 2 and he's just 24 lbs. He was up to 26 at one point a month or so ago. I called the doc last week due to some blood in his stool. She said he had some tairs in hi anal tissue area so we kept a and d ointment on it along with some triple antibiotic ointment and it was healed up in about 24 - 48 hours. He screamed with his last bowel movement and it was rather firm to hard (unusal for him). So I took him in and told the doc that my Rheumatologist put me on a celiac diet and asked if he could be too.

I'm wondering also about my 7 year old daughter. She's had stomachaches and really bad leg pains since she was young. ALso has had trouble with constipation since she switched over to formual at 3 m onths. IT was so stuck at one point before she was 2, that I took the thermometer and helped pull it out.

Hope this helps,

Nicole

p.s. Joshua did get blood work done on Monday, so we'll hear back sometime soon I"d expect.

p.s.s. Doc wanted me to get a list of his weight and height too from begining until current. I"ve got a lot of them written down since he went to a foot doctore the first 5 months of his life. He was born with on really sever club foot and one slightly.

Smitten Rookie

I am currently getting more tests for Celiac. One of my blood test were borderline and my bx showed blunt villi. My daughter is 11 years old and 60 lbs. She has had stomaches and bouts of diahrrea. After I get the final word that I have Celiac......she is getting tested! I wish I would have known about all of this years ago. But, she is young yet and if she has it, we still have time for her to do some more growing! :o)

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    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
    • Scott Adams
      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
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