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Whyz
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Go to solution Solved by knitty kitty,

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Whyz Newbie
Whyz
Posted

Had my endoscopy yesterday I was told it would be about 6 weeks for the results..  Also found a small H Hernia  only small they won’t be doing anything about that about that.

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knitty kitty Grand Master
knitty kitty
Posted
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Hello, @Whyz,

You're in the "hurry up and wait"  part of diagnosis.  The anxiety can be hard to deal with.  Do you have a hobby?  I like knitting.  Watching suspense movies (Alfred Hitchcock movies are a favorite) helps focus that anxiety which gets resolved by the end of the movie, a temporary relief, but helpful.

I have a small hernia, which won't get any attention, too.  Not to worry.  Mine hasn't been an issue for years.  Don't worry.  You'll be fine.  The tribe here understands.  Sending {{{hugs}}}

Whyz Newbie
Whyz
Posted
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I want to start baking gluten free bread, cakes pies ,etc a bit scared in case it goes pear shaped. Don’t know whether to get a bread machine.

any help recipes links I would appreciate.

Scott Adams Grand Master
Scott Adams
Posted

If all testing is now completed you may want to let your doctor know that you are starting a gluten-free diet. If you symptoms go away on the diet it is further confirmation that you may have celiac disease, and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

 

 

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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