Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test

Whyz
 Share
Go to solution Solved by knitty kitty,

Recommended Posts

Whyz Newbie
Whyz
Posted

Had my endoscopy yesterday I was told it would be about 6 weeks for the results..  Also found a small H Hernia  only small they won’t be doing anything about that about that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Solution
knitty kitty Grand Master
knitty kitty
Posted
  • Solution

Hello, @Whyz,

You're in the "hurry up and wait"  part of diagnosis.  The anxiety can be hard to deal with.  Do you have a hobby?  I like knitting.  Watching suspense movies (Alfred Hitchcock movies are a favorite) helps focus that anxiety which gets resolved by the end of the movie, a temporary relief, but helpful.

I have a small hernia, which won't get any attention, too.  Not to worry.  Mine hasn't been an issue for years.  Don't worry.  You'll be fine.  The tribe here understands.  Sending {{{hugs}}}

Whyz Newbie
Whyz
Posted
  • Author

I want to start baking gluten free bread, cakes pies ,etc a bit scared in case it goes pear shaped. Don’t know whether to get a bread machine.

any help recipes links I would appreciate.

Scott Adams Grand Master
Scott Adams
Posted

If all testing is now completed you may want to let your doctor know that you are starting a gluten-free diet. If you symptoms go away on the diet it is further confirmation that you may have celiac disease, and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SEQ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Newbie with Celiac / NCGS symptoms

      I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could...
    2. Scott Adams
      - Scott Adams replied to barb simkin's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      celiac, chocolate and alcohol

      Given your strong reactions it would be wise not to eat things offered to you without reading the ingredient labels. It's possible there was indeed gluten or some allergen in the chocolates--barley malt is a common ingredient in some chocolates.
    3. trents
      - trents replied to SEQ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Newbie with Celiac / NCGS symptoms

      Yes, an IgG panel is the logical next step. However, you would still need to be consuming normal amounts of gluten to ensure valid IgG testing. Since it has only been a week that you have been off gluten, there is still likely time to restore antibodies to detectable levels before the blood draw. IgG antibody tests are not quite as specific for celiac disease...
    4. SEQ
      - SEQ replied to SEQ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Newbie with Celiac / NCGS symptoms

      Thanks @trents. I have exchanged some messages with the clinic today, and they are saying that the reason there is no result for the total IgA levels is because I don't have any. Apparently a negative result means that it does not appear as a line on the results at all. I am not sure I buy this, but it is what they are telling me. I am leaning more towards...
    5. trents
      - trents replied to SEQ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Newbie with Celiac / NCGS symptoms

      IGA deficiency is a lot more common than we used to think but I can't give you a number. Doctors used to believe it only happened in children but we know better now. Every doctor should order, at the very minimum, total IGA and tTG-IGA. It may be true that you don't have to worry as much about cross contamination if you have NCGS but that is not a given. ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,334
    • Most Online (within 30 mins)
      7,748
    DME
    Newest Member
    DME
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Newbie with Celiac / NCGS symptoms

      By Scott Adams · Posted

      I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could salvage the results of your tTG-IgA test, as long as you were eating lots of gluten beforehand.
    • Scott Adams
      celiac, chocolate and alcohol

      By Scott Adams · Posted

      Given your strong reactions it would be wise not to eat things offered to you without reading the ingredient labels. It's possible there was indeed gluten or some allergen in the chocolates--barley malt is a common ingredient in some chocolates.
    • trents
      Newbie with Celiac / NCGS symptoms

      By trents · Posted

      Yes, an IgG panel is the logical next step. However, you would still need to be consuming normal amounts of gluten to ensure valid IgG testing. Since it has only been a week that you have been off gluten, there is still likely time to restore antibodies to detectable levels before the blood draw. IgG antibody tests are not quite as specific for celiac disease as are the IGA tests but they are certainly valuable in the case of IGA deficiency. They also seem to have a little more "staying power" in the sense of detecting celiac disease in the case of those who may have already started a gluten-free diet as long as they haven't been on it for an extended period of time. But don't rely on that. Get back on gluten if you can possibly endure it if you intend to go forward with IgG testing. This might be helpful:   
    • SEQ
      Newbie with Celiac / NCGS symptoms

      By SEQ · Posted

      Thanks @trents. I have exchanged some messages with the clinic today, and they are saying that the reason there is no result for the total IgA levels is because I don't have any. Apparently a negative result means that it does not appear as a line on the results at all. I am not sure I buy this, but it is what they are telling me. I am leaning more towards the theory that they didn't test it in the first place. But, working on the basis that the test result was zero, I asked what the next steps would be, given that I apparently have no IgA antibodies. They have asked if I now want to have a tTG-IgG and a DGP-IgG test. Is this really the next step if I have no total IgA?
    • trents
      Newbie with Celiac / NCGS symptoms

      By trents · Posted

      IGA deficiency is a lot more common than we used to think but I can't give you a number. Doctors used to believe it only happened in children but we know better now. Every doctor should order, at the very minimum, total IGA and tTG-IGA. It may be true that you don't have to worry as much about cross contamination if you have NCGS but that is not a given. By the way, welcome to the forum, @SEQ!
×
×
  • Create New...