Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results(20yo): Celiac?


dfgray

Recommended Posts

dfgray Newbie

Hi Scott, I just came across your article regarding blood tests to determine celiac disease and wanted to thank you for writing it so clearly. Today I pulled out my 20 year old test results from Immumo labs and followed along as I reread the article.
 

I was first tested in April 2005. At the time I was told that I’m highly sensitive to gluten and must avoid but the practitioner would not say I had celiac disease without a biopsy to confirm.
 

Based on the information in the article, it looks like there’s a 97% chance that I have celiac disease [here are my results: IgG ELISA test :106 units; IgA ELISA: 135 units; tTG: 251units). The range for all the tests is: <20=negative, 20-30=week positive, >30units =moderate to strong positive]. Am I correct in my assessment? Is there any doubt that I have celiac? I’m not looking for medical advice but I’d love your opinion on this. I have eaten strictly gluten free for 20 years now and wouldn’t ever consider otherwise regardless. Thanks in advance, and thanks again for your article. Dana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Based on your test results (IgG ELISA: 106 units, IgA ELISA: 135 units, tTG: 251 units), all of which are well above the >30 units threshold for moderate to strong positive, there is a very high likelihood—as you noted—that you have celiac disease. While a biopsy was traditionally considered the gold standard for confirmation, your exceptionally elevated antibody levels, combined with your long-standing gluten sensitivity and strict adherence to a gluten-free diet, strongly support the diagnosis. Given that you’ve been gluten-free for 20 years, a biopsy now might not be reliable (since it requires gluten exposure to detect damage). Your assessment aligns with current understanding—many experts would consider these results diagnostic in the right clinical context. That said, if you ever needed formal confirmation (e.g., for medical documentation), a discussion with a gastroenterologist about potential gluten challenge testing (though challenging) could be an option. Regardless, your proactive approach to avoiding gluten is absolutely the right course! Thanks for sharing your experience—it’s a great example of how patient awareness and adherence can manage celiac effectively.

There are benefits to not having a formal diagnosis, for example people with a formal diagnosis may face higher life insurance costs, as well as higher private health insurance costs.

dfgray Newbie

I appreciate your insights. Thank you 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...