Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results(20yo): Celiac?


dfgray

Recommended Posts

dfgray Newbie

Hi Scott, I just came across your article regarding blood tests to determine celiac disease and wanted to thank you for writing it so clearly. Today I pulled out my 20 year old test results from Immumo labs and followed along as I reread the article.
 

I was first tested in April 2005. At the time I was told that I’m highly sensitive to gluten and must avoid but the practitioner would not say I had celiac disease without a biopsy to confirm.
 

Based on the information in the article, it looks like there’s a 97% chance that I have celiac disease [here are my results: IgG ELISA test :106 units; IgA ELISA: 135 units; tTG: 251units). The range for all the tests is: <20=negative, 20-30=week positive, >30units =moderate to strong positive]. Am I correct in my assessment? Is there any doubt that I have celiac? I’m not looking for medical advice but I’d love your opinion on this. I have eaten strictly gluten free for 20 years now and wouldn’t ever consider otherwise regardless. Thanks in advance, and thanks again for your article. Dana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Based on your test results (IgG ELISA: 106 units, IgA ELISA: 135 units, tTG: 251 units), all of which are well above the >30 units threshold for moderate to strong positive, there is a very high likelihood—as you noted—that you have celiac disease. While a biopsy was traditionally considered the gold standard for confirmation, your exceptionally elevated antibody levels, combined with your long-standing gluten sensitivity and strict adherence to a gluten-free diet, strongly support the diagnosis. Given that you’ve been gluten-free for 20 years, a biopsy now might not be reliable (since it requires gluten exposure to detect damage). Your assessment aligns with current understanding—many experts would consider these results diagnostic in the right clinical context. That said, if you ever needed formal confirmation (e.g., for medical documentation), a discussion with a gastroenterologist about potential gluten challenge testing (though challenging) could be an option. Regardless, your proactive approach to avoiding gluten is absolutely the right course! Thanks for sharing your experience—it’s a great example of how patient awareness and adherence can manage celiac effectively.

There are benefits to not having a formal diagnosis, for example people with a formal diagnosis may face higher life insurance costs, as well as higher private health insurance costs.

dfgray Newbie

I appreciate your insights. Thank you 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,520
    • Most Online (within 30 mins)
      7,748

    Tara M.
    Newest Member
    Tara M.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.