Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Meniers and celiac are they related

nataliallano
 Share

Recommended Posts

nataliallano Rookie
nataliallano
Posted

Hi all, I was recently diagnose with menier's after a long year of vertigo, ear pressure, tinnitus and anemia. I went to several specialist in The USA and also in Mex. got all the hearing test and MRI but they cant find much. I started a low sodium diet no caffeine no alcohol, and gluten free. I feel no changes in my symptoms. I have tried 6 months o betahistine and diuretics didn't work. Now I'm completely gluten free and  i have some days better than others but nothing seems to work. I don't feel me. 

What else can I do? There is something else I could check like vitamins I'm currently taking Ginkgo Biloba as a supplement. how can I find out why Menier's?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knitty kitty Grand Master
knitty kitty
Posted
(edited)

Welcome to the forum, @nataliallano,

What was done to correct your anemia??? 

Have you been tested for other nutritional deficiencies besides iron?  You will want to get checked for nutritional deficiencies before starting supplementing essential vitamins and minerals.  

Edited by knitty kitty
Typo correction
knitty kitty Grand Master
knitty kitty
Posted
(edited)

Welcome to the forum, @nataliallano,

There's a dozen or so vitamins and about as many minerals that our bodies need to live and thrive.  Our vitamins and minerals can become depleted in Celiac Disease due to malabsorption and inflammation, so we need to eat a nutritionally dense diet, and keep inflammation to a minimum.  

Edited by knitty kitty
Typo correction
nataliallano Rookie
nataliallano
Posted
  • Author

Kitty, to correct the anemia I got IV iron and B complex for 30 days. Then my next step will be test for nutritional deficiencies. 

 

knitty kitty Grand Master
knitty kitty
Posted

Yes, Vitamin D is frequently low in Celiac Disease and Meniere's both. 

Ask for an Erythrocyte Transketolace test to check for thiamine insufficiency.  Diuretics can cause excess thiamine loss.  Benfotiamine is a form of thiamine that improves intestinal health.  Thiamine in the form TTFD (Tetrahydrofurfuryl Disulfide) helped improve my Meniere's syndrome.

nataliallano Rookie
nataliallano
Posted
  • Author

Thanks Kitty for your guidance. I will do the test to see if I have nutrients deficiencies and at the same time re organize my diet to see if that helps with my vertigo and other symptoms. 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. NoGlutensToday
      - NoGlutensToday posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Is Purito's Oat In Calming Gel Cream safe for celiacs?

      I'm trying to figure out if Oat In Calming Gel Cream from Purito is safe to use as a moisturizer on my face. In particular, I'm not sure what to think about the oat seed water. Not sure if that should be considered safe or not. The full list of ingredients on their website are: Avena Sativa (Oat) Seed Water (77%), Butylene Glycol, Glycerin, 2,...
    2. Heatherisle
      - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Blood results

      Aw thank you so much for replying so quickly. Just wish the endoscopy had been clearer but as you say she might be in the early stages although she’s had gastric intestinal symptoms for a few years now but was told it was IBS. She won’t get the results for about 12 weeks which is frustrating, so hopefully if she trials a gluten free diet things will hopefully imp...
    3. trents
      - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Blood results

      Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac...
    4. Heatherisle
      - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Blood results

      Sorry, typing error, not strophic, should read strophic!!!! Did it again, atrophic, not strophic, (flippin technology)
    5. Heatherisle
      - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Blood results

      Hi My daughter has had her endoscopy and biopsies done but still none the wiser as to whether it’s coeliac even though she has many of the signs and symptoms. Gastroenterologist not 100% convinced as herEMAb blood test was negative even though her TTG Ab19 was positive at 19, lab range was 0.0-7.0. Bulb D1 biopsy potentially looked a little flat/strophic, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,056
    • Most Online (within 30 mins)
      7,748
    Jacey10
    Newest Member
    Jacey10
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NoGlutensToday
      Is Purito's Oat In Calming Gel Cream safe for celiacs?

      By NoGlutensToday · Posted

      I'm trying to figure out if Oat In Calming Gel Cream from Purito is safe to use as a moisturizer on my face.  In particular, I'm not sure what to think about the oat seed water. Not sure if that should be considered safe or not. The full list of ingredients on their website are: Avena Sativa (Oat) Seed Water (77%), Butylene Glycol, Glycerin, 2,3-Butanediol, 1,2-Hexanediol, Aqua/Water, Ammonium Acryloyldimethyltaurate/VP Copolymer, Squalane, Hydroxyacetophenone, Carbomer, Dipotassium Glycyrrhizate, Panthenol, Tromethamine, Ethylhexylglycerin, Inulin Lauryl Carbamate, Sodium Surfactin, Beta-Glucan
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Aw thank you so much for replying so quickly. Just wish the endoscopy had been clearer but as you say she might be in the early stages although she’s had gastric intestinal symptoms for a few years now but was told it was IBS. She won’t get the results for about 12 weeks which is frustrating, so hopefully if she trials a gluten free diet things will hopefully improve even if only slightly. I know improvements aren’t likely to happen immediately
    • trents
      Blood results

      By trents · Posted

      Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac disease, perhaps transitioning from NCGS (Non Celiac Gluten Sensitivity) to celiac.
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Sorry, typing error, not strophic, should read strophic!!!! Did it again, atrophic, not strophic, (flippin technology)
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Hi  My daughter has had her endoscopy and biopsies done but still none the wiser as to whether it’s coeliac even though she has many of the signs and symptoms. Gastroenterologist not 100% convinced as herEMAb blood test was negative even though her TTG Ab19 was positive at 19, lab range was 0.0-7.0. Bulb D1 biopsy potentially looked a little flat/strophic, D2 relatively unremarkable. Also found some oesophagitis and mild gastritis, biopsy taken from there. She has also to hand take another stool sample for faecal Calprotectin which I’ve never heard of!! Als advised to trial a gluten free diet. Just wondering if anyone has had similar results. Thanks so much
×
×
  • Create New...