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Hashimoto's


taneil

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taneil Apprentice

I have Hashimoto's hypothyroidism, it is an autoimmune thyroid problem, I believe that Gluten Intolerance trigger the Hashimoto's. I have actually read some information about how going gluten-free may allow the thyroid to re-regulate itself. This is what I am praying. I have been gluten-free for 1 month and am going to get some more blood work done to check my thyroid again. I don't know if gluten-free alone will be enough for things to get corrected but so far I am getting less of the Hypothyroid symptoms. My doctor is a little worried about my decision to try gluten-free diet before hormone replacement stuff, but she said I could try.


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tammy Community Regular

:D Hi,

I too am Hypothroid with Hashimoto's. My thyroid is regulated with two thyroid medications, at this time. I also have adrenal insufficiency. I am gluten-free since December of 2002. The endocrinologist did reduce one of my thyroid medications from 15 mcg to 7.5 mcg. within the last year. I was happy.

What has your experience been with the effects of an autoimmune disease?

Take Care of yourself.

  • 4 months later...
taneil Apprentice

Update on my Hypothyroid. I have been gluten-free for six months now and am feeling pretty good. I recently had blood work done again for celiac disease and my thyroid. My TSH level dropped from 98 to 6 and my IgG level dropped from 40 to 9. My doctor was very impressed that my TSH had dropped so much just by going gluten-free. I am also taking a supplament to support my Thyroid, but no hormones.

Anyway, I am excited that the gluten-free diet has helped so much with my Thyroid. Technically my Thyroid is still high but I also haven't stayed away from Caesin. So know I am going to avoid Caesin and see if that will help my TSH to drop to a normal level.

I just wanted to let everyone know that diet does have a lot to do with our health. And if something is wrong it doesn't mean we need a drug to fix the problem. We need to be proactive to find the root cause and fix the problem not just put a band-aid on it.

tarnalberry Community Regular

congrats on the great results! :-)

ryebaby0 Enthusiast

My son and husband are celiac disease; my other son and I tested completely negative and are asymptomatic -- but I was dx w/ Hashimoto's about 3 months ago. (they discovered that while working on gyn problems....) Does anybody know if I should think about having my celiac disease screens run again?

joanna

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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