Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here- Dd May Be Celiac

Irishlass

Recommended Posts

Irishlass Rookie
Irishlass
Posted

My dd has had allergy troubles all her 7 years, and joint pain most of them too. Her joint pain has increased the past couple of months, so I took her into the pediatrician today. After examining her (her stomach was very tender) and looking again at our history, he said the first thing he could think of was celiac. He sent us to the lab for blood tests for celiac and other things (RA, etc) and recommended that after the labs are drawn we go ahead and put her on a gluten free diet. He said the test may come back negative, that it often will even if there is a gluten problem, but that her clinical experience would be the real deciding factor- if the diet helps then that's the problem.

I went to our natural food store and got some gluten free products to replace some of the things we normally use. After perusing through the forums, though, I freaking out a little... shampoos, soaps, there are probably a dozen more things I can't think of that may have gluten in them. :ph34r:

In the initial phase, how important are the other stuff- is the food the most impt thing at first?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mouse Enthusiast
mouse
Posted

Breath deeply and take it slow. There is a lot of help here. But, you are blessed to have a wonderful doctor (so many were not). So, half of your battle is done. Worry about the gluten free foods first and maybe the shampoo and the soap she bathes in. Just in case they get in her mouth. The easiest for me at least was going with all fresh foods and then I did a lot of wok cooking. I did that as I researched what to buy and not buy. Many will post here to help you further. Good luck.

flagbabyds Collaborator
flagbabyds
Posted

Dude you have an awesome doc!

armetta is right, just breathe at first. If your doctor is that good, he might have some suggestions into the diet. I ould worry about the little things too, because if you are getting contamintaion frm somewhere, she might not get better. If you go the Whole Foods they have a gluten free bakehouse and it is really good gluten-free breads and pies and cookies and stuff.

If you h ave more questions, then you can e-mail me, I am 15 and have been celiac all my life.

TCA Contributor
TCA
Posted

It took me weeks to get the hang of all of this and I still struggle sometimes. We've all been there, so don't worry. You'll learn too. I have a list I started for people who keep my son that has the basics on it. There's a list of foods that he eats (very picky) included. PM me and I can send it to you. I spent days going through my cubbard and med cabinet to get rid of things. We were using some curel lotion that made my daughter very sick. She is hypersensitive, though. You will make mistakes, but don't panic. It all will come in time.

Be thankful for your doctor. I had the same symptoms all my life and no one would listen. They tested for RA and it was negative, so they thought it was in my head and called it growing pains. :angry: I am now pain free for the first time in my life and I'm now 30. :) I'm on allergy shots and have asthma, but it's getting better slowly. I hope your daughter feels better soon.

Let me know if I can help in any way.

Irishlass Rookie
Irishlass
Posted
  • Author

Thanks for your thoughts everyone.

I do have a great dr- team of drs, actually. The dr we saw is in a two dr practice with the lady who is our main ped. She's been traveling a lot lately because she does a lot of autism research and is the DAN network's head dr.

Anyway, is there anywhere on the net where there is a list of manufactured products that are gluten free- foods, body care, etc?

Guest nini
Guest nini
Posted

there is the Delphi forums list which I can e-mail to you along with a bunch of other files I've put together in a Newbie survival kit... if you would like this e-mailed to you just e-mail me at nisla@comcast.net and in the subject line put "request newbie survival kit" and I will promptly e-mail it to you!

My daughter will be 6 next week and her and I both have been gluten-free for about 3 years now! It will be ok! Stick to foods that are naturally gluten-free at first, then you can try some of the substitute products. We all can help you figure out which ones taste better than others so you don't waste a ton of money!

Guest Robbin
Guest Robbin
Posted
:) Hi and welcome. WOW YOU HAVE A GREAT DOCTOR!! Yes, as nini said, it will get so much easier and if you get a couple of cookbooks, you can make substitutions for a lot of things. They are coming out with a lot of great products too. I would encourage also to find a support group maybe with other kids your daughters age. It helped my son when he went to camp for diabetes sooo much to see other kids like him, that he wasn't the only one with a different way of eating. Take care :)
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.