Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Foot Swelling?


sarahm19

Recommended Posts

sarahm19 Newbie

Hi everyone! Im still waiting to get my tests back. Basically i have TOOOONS of celiacs symptoms and a lot of other autoimmune disorders. I cut out gluten for about 1 month now and i have wayyy less stomach probs, so i think i have celiacs.

Anyway, i have a lot of symptoms of malnutrition like i'm very underweight, cracked lips, etc. Almost every day, my feet get so swollen like a balloon and i read online that that can be from malnutrition. Is that from celiacs cause i cant absorb stuff right?

How long does it take of being gluten-free to stop the malnutrition symptoms? Thanks!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Well, I never LOOKED malnourished, as I was gaining instead of losing weight, but I was low in several nutrients.

My feet used to get awfully swollen, by night they'd be blown up like balloons. I never have swollen feet any more now.

You might want to consider that you may have other intolerances as well, not just gluten. The swelling could be a reaction to something else. I am not sure if it could be from malnutrition, maybe one of the people that lost a ton of weight prior to diagnosis can answer that one.

sarahm19 Newbie

thanks for the fast reply.

I do know that I'm lactose intolerant too and im pretty sure I'm allergic to citrus. I'm avoiding all that. Lately its just hard for me to eat out because i really dont want them to mess up this healing process for me. Like im supposed to meet people at quiznos Saturday, but they have gluten in all the sandwiches and even in the chicken breast strips...well maybe i'll bring something!

Ashley Enthusiast

Sarahm19- Your symptoms are very similar to what mine were. I, too, was really underweight (lost nearly eighty-pounds). Right, the anti-bodies attack the small intestine when gluten sticks to the villi (sp), wearing them down thus many nutrients are not absorbed. My feet were also swollen at times, but, I've had issues with my right foot being re-sprained for the fourth time. Tomorrow, I have will be Dxed for an entire year. After staying gluten-free for the most part, I noticed my weight-loss began to level off near 8 months or so. It's different for everyone, depending how long you went eating gluten and how damaged your intestines are. What kinds of tests did have done? Blood Work? Endo scope? A biopsy is really good look of how your intestines look and the G.I. doctor could probably give a rough sketch of how long it would take for things to heal.

-Ash

nikki-uk Enthusiast
Anyway, i have a lot of symptoms of malnutrition like i'm very underweight, cracked lips, etc. Almost every day, my feet get so swollen like a balloon and i read online that that can be from malnutrition. Is that from celiacs cause i cant absorb stuff right

My husband's feet and ankles used to swell up so much he couldn't get shoes on-he could only wear sandals.-but he was very skinny everywhere else.His feet also used to be a funny purple colour.

If you pushed your finger into his swollen feet it used to leave a white indentation,suggesting it was water retention.No doctor ever gave him an explanation for it,-so we just chalked it up to one of the many symptoms of celiac disease.

The swelling went away a few months after G.F

eKatherine Apprentice

My feet were swollen, too, and the one with the bone spurs was downright painful. I used to get bruising just from walking.

Not eating gluten has been extremely helpful, but it's not the only issue. I'll be figuring out if milk or something else is an issue soon, too.

If your lips are cracked and dry, you might want to look at your diet to see if you're getting enough fat. Fat keeps your eyes bright and your coat shiny.

Guest Babbia

I would also have very swollen feet, but I was gaining weight.

Anyone know what causes the swelling?

Babbia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

I have bone spurs as well, one on my heel, the other on my left hip. Not fun things.

Swelling of feet and legs is frequently caused by using too much salt. This problem can be inherited as well, and a low sodium diet is recommended.

sarahm19 Newbie
I have bone spurs as well, one on my heel, the other on my left hip. Not fun things.

Swelling of feet and legs is frequently caused by using too much salt. This problem can be inherited as well, and a low sodium diet is recommended.

hmm thats weird. Ive always had very low blood pressure and im always showing dehydration on my tests too so they told me have salt if i want. Thanks everyone for the replies. Im just really happy, thinking that maybe 6 months from now I'll be feeling a lot better. Its hard to stay gluten-free! But its gonna be worth it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    4. - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.