Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Foot Swelling?


sarahm19

Recommended Posts

sarahm19 Newbie

Hi everyone! Im still waiting to get my tests back. Basically i have TOOOONS of celiacs symptoms and a lot of other autoimmune disorders. I cut out gluten for about 1 month now and i have wayyy less stomach probs, so i think i have celiacs.

Anyway, i have a lot of symptoms of malnutrition like i'm very underweight, cracked lips, etc. Almost every day, my feet get so swollen like a balloon and i read online that that can be from malnutrition. Is that from celiacs cause i cant absorb stuff right?

How long does it take of being gluten-free to stop the malnutrition symptoms? Thanks!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Well, I never LOOKED malnourished, as I was gaining instead of losing weight, but I was low in several nutrients.

My feet used to get awfully swollen, by night they'd be blown up like balloons. I never have swollen feet any more now.

You might want to consider that you may have other intolerances as well, not just gluten. The swelling could be a reaction to something else. I am not sure if it could be from malnutrition, maybe one of the people that lost a ton of weight prior to diagnosis can answer that one.

sarahm19 Newbie

thanks for the fast reply.

I do know that I'm lactose intolerant too and im pretty sure I'm allergic to citrus. I'm avoiding all that. Lately its just hard for me to eat out because i really dont want them to mess up this healing process for me. Like im supposed to meet people at quiznos Saturday, but they have gluten in all the sandwiches and even in the chicken breast strips...well maybe i'll bring something!

Ashley Enthusiast

Sarahm19- Your symptoms are very similar to what mine were. I, too, was really underweight (lost nearly eighty-pounds). Right, the anti-bodies attack the small intestine when gluten sticks to the villi (sp), wearing them down thus many nutrients are not absorbed. My feet were also swollen at times, but, I've had issues with my right foot being re-sprained for the fourth time. Tomorrow, I have will be Dxed for an entire year. After staying gluten-free for the most part, I noticed my weight-loss began to level off near 8 months or so. It's different for everyone, depending how long you went eating gluten and how damaged your intestines are. What kinds of tests did have done? Blood Work? Endo scope? A biopsy is really good look of how your intestines look and the G.I. doctor could probably give a rough sketch of how long it would take for things to heal.

-Ash

nikki-uk Enthusiast
Anyway, i have a lot of symptoms of malnutrition like i'm very underweight, cracked lips, etc. Almost every day, my feet get so swollen like a balloon and i read online that that can be from malnutrition. Is that from celiacs cause i cant absorb stuff right

My husband's feet and ankles used to swell up so much he couldn't get shoes on-he could only wear sandals.-but he was very skinny everywhere else.His feet also used to be a funny purple colour.

If you pushed your finger into his swollen feet it used to leave a white indentation,suggesting it was water retention.No doctor ever gave him an explanation for it,-so we just chalked it up to one of the many symptoms of celiac disease.

The swelling went away a few months after G.F

eKatherine Apprentice

My feet were swollen, too, and the one with the bone spurs was downright painful. I used to get bruising just from walking.

Not eating gluten has been extremely helpful, but it's not the only issue. I'll be figuring out if milk or something else is an issue soon, too.

If your lips are cracked and dry, you might want to look at your diet to see if you're getting enough fat. Fat keeps your eyes bright and your coat shiny.

Guest Babbia

I would also have very swollen feet, but I was gaining weight.

Anyone know what causes the swelling?

Babbia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

I have bone spurs as well, one on my heel, the other on my left hip. Not fun things.

Swelling of feet and legs is frequently caused by using too much salt. This problem can be inherited as well, and a low sodium diet is recommended.

sarahm19 Newbie
I have bone spurs as well, one on my heel, the other on my left hip. Not fun things.

Swelling of feet and legs is frequently caused by using too much salt. This problem can be inherited as well, and a low sodium diet is recommended.

hmm thats weird. Ive always had very low blood pressure and im always showing dehydration on my tests too so they told me have salt if i want. Thanks everyone for the replies. Im just really happy, thinking that maybe 6 months from now I'll be feeling a lot better. Its hard to stay gluten-free! But its gonna be worth it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,086
    • Most Online (within 30 mins)
      7,748

    M A Humphries
    Newest Member
    M A Humphries
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.