Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Good - Still Having Problems


VAGuy

Recommended Posts

VAGuy Apprentice

Hello everybody, thought I'd run this past you folks.

gluten-free since November

EnteroLab advised me to go gluten-free, and avoid dairy, eggs, and yeast in April

and that I did not have colitis

Had been dairy free for a while before that

Have found that only minimal amounts of corn products can be tolerated

Can tolerate only minimal fiber

Why does sugar trash my digestive system? If between meals I have a little Jello, Tang, 100% fruit juice, etc. I'm running for the bathroom a few hours later. A little Smucker's Blueberry Syrup (corn syrup/sugar) kills me.

I can have 2/3 banana @ dinner with say 3 med. strwberries, and 1/2 tablespoon All Fruit (9g sugar per tablespoon) on a 3g of sugar waffle (waffle is desert) and do OK, and maybe a couple sips of apricot nectar later, but otherwise I've found it best if I just avoid sugar/sweet items.

Any thoughts would be appreciated. I have a appt. 7/7/04 with a GI to finally talk about this and am really trying to get things mapped out/organized before I see him. If I can get a line on sugar woes, the only thing left on my list is to determine whether it is spaghetti sauce that bothers, or the soy flour in the pasta I'm using.

Thanks, Phil

P.S. Depending on where you live you'll understand when I say am I glad the Brood X cicadas are beginning to die off, enough is enough.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Phil, I am sorry you are still having a tough time, :( I am too, to a point. ;) I hope we BOTH feel better soon! I do not have a problem with sugar or fruit, but I don't eat a lot of fruit just in case, but I can eat Jello without a problem.

I looked around the web and found this article about IBS and Sugar, I know you don't have IBS but thought I would pass it on anyway:

Open Original Shared Link

I hope this is helpful to you and if not maybe someone else will be along shortly to help you out...... good luck and feel better!!! :D

travelthomas Apprentice

Hi Phil,

I did notice when I first went gluten-free that I was running to the bathroom to urinate all the time. By asking questions on this board I found out it was certain fruits that caused the problem. Processed fruits will exaggerate the problem. Try eliminating all fruit from your diet, and then slowly add it back in one at a time. The culprit will stand out like a sore thumb.

VAGuy Apprentice

Thanks for your replies - one more piece of the puzzle I guess, a little more info to take to the Doc - maybe I can sneak a couple strawberries with dinner rather than on an empty stomach, homegrown taste so good. I have been tryign to avoid corn syrup for a while and it helps, can tolerate a little bit of ketchup or BBQ sauce with it but am being real careful.

Thanks again

Phil

RojSpencer Newbie
can tolerate a little bit of ketchup or BBQ sauce with it but am being real careful.

I haven't found a BBQ sauce that doesn't have viniger in it yet? Are you sure it is safe? Only Heinze ketchup also (has distilled viniger), not Hunts.

If you're still gettting a steady stream of gluten, even if in traces, it will prevent your recovery.

tarnalberry Community Regular

Most bbq sauces have cider vinegar, like the only gluten-free one I've found (I haven't looked hard, I'm sure there are plenty of others) - Bone Suckin' Sauce.

But, even if it had grain vinegar, unless something is added after the distillation process (which would make it something other than plain vinegar), there is no gluten in distilled grain vinegar. The molecular weight of gluten is far too heavy to allow it to pass through the process of distillation. There's been a lot of research on this, and the recent stuff has made a nearly completely closed case on ths issue. (Heh... about as much as you can do to prove something is positive. ;-) )

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is it gluten?

    2. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

    3. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.