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Support In Manhattan?

lushgreen

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lushgreen Apprentice
lushgreen
Posted

Does anyone know of any support groups in New York City? I know there's one in Westchester and stuff that happens upstate but have not heard of anything in the city. Any information would be helpful.

  • 2 weeks later...
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jkmunchkin Rising Star
jkmunchkin
Posted

I know there is quite a large support group in NYC, but unfortunately I don't know anything about it. Maybe look on Celiachicks and see if there is any info, or just Google NYC Celiac Support Group.

pinky Apprentice
pinky
Posted

Open Original Shared Link

Meetup group in nyc, meets ~ 1x/month

lushgreen Apprentice
lushgreen
Posted
  • Author

just went to my first meetup yesterday :)

  • 1 month later...
laurieb119 Rookie
laurieb119
Posted
Does anyone know of any support groups in New York City? I know there's one in Westchester and stuff that happens upstate but have not heard of anything in the city. Any information would be helpful.

HI,

MY NAME IS LAURIE. I HAVE A SUGGESTION AS FAR AS A GROUP. FUNNY THING I HAVE NEVER BEEN YET. I LIVE IN BROOKLYN SO ALSO SINCE I HAVE A 10 MONTH OLD IT HAS BEEN A BIT DIFFICULT FOR ME TO GET THERE. ANYWAYS ITS FROM A MEETUP WEBSITE. I DO NOT KNOW A WEBSITE EXACTLY . BUT THERE IS A THING CALLED MEETUP, WITH ALL SORTS OF SUBJECTS THAT PEOPLE MEET UP ABOUT. ANYWAYS THERE IS ONE FOR CELIAC AND IT IS I NYC. THEY MEET ONCE MONTHLY. TELL ME IF YOU CAN FIND IT. IF NOT I WILL LOOK FOR AN OLD EMAIL AND I CAN FOWARD IT TO YOU.

TALK TO YOU SOON, LAURIE

LOL, I JUST READ THE REPLY THAT SPOKE ABOUT T HIS, SORRY FOR POSTING IT TOO,LOL

  • 7 months later...
joel Newbie
joel
Posted

Your Organizer, Shanel, sent the following message to the

members of The New York City Celiac Disease Meetup Group:

----------------------------------------------------------------

Announcing a new event for The New York City Celiac Disease

Meetup Group!

What: Dinner at Cafe Fuego

When: Tuesday, January 30, 7:00 PM

Event fee: USD2.00 per person

Where: Click the link below to find out!

Event Description: Cuban Cuisine at it's best.... Great

food... great music... very well priced....check out the

website www.CAFEFUEGO.com the chef is putting together some

specials for us..... yummy....

Learn more here: Open Original Shared Link

Join the group link attached This is a copy of the message.

Archived

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      Many thanks!
    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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