Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Kamakazi Weekend


Mandy F.

Recommended Posts

Mandy F. Apprentice

O.k. so, I cheated. And I decided that if I was going to do it, I'd go big... so for all of you out there who have major reactions, I ate some gluten for you too. :D

On Friday, I had a banquet for work. The menu looked like it would be pretty easy to navigate, but when I got there, it got harder. The Beef and Chicken were both in gravy, it was buffet style so the salad got some croutons in it, and the potatoes had some kind of seasoning on them that made them seem a bit questionable to me... I was starving, though, and just decided to eat it anyway knowing that I don't have any major reactions. While I was at it, I had two peices of cake (I've missed cake so much and it was so so so so good!!!) because I figured "eh, I've already been glutened, why not?"

Well, after Friday, I decided to make this weekend my very last gluten weekend ever and decided to make it count.

I had Krispy Kreme doughnuts for breakfast on Saturday... but didn't eat any gluten for the rest of the day.

Then for the Grand Finale, my friend and I went to the Cheesecake Factory. I got a meal that I figured would be low on gluten then got a piece of Strawberry Cheesecake. I'm definetly going to learn to make a gluten-free cheesecake...

I suppose this was my first (and last :rolleyes: ) test of the diet and I have learned my lesson. I was so fatigued that I lived on coffee for the weekend and found that I spent a great deal more time in the bathroom this weekend as well.

I guess all I can really say is "Gluten -- you will be missed!" :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

Mandy you are real real bad. It makes my dabble with gluten seem hardly worth mentioning. But I will mention it.

After a month of going gluten free I had the tiniest little bit of kfc, and I mean tiny, and a snack pack of crisps, which contained flour in. This was all eaten undercove, in the bathroom, because I would've been given a severe telling off from husband and sons. They went through a stage of making sure I was eating the right thing, and that was done while they were eating chocolate biscuits I might add. Within an hour or so, of eating the offending articles, the reactions started. I got wind and burps in my stomach, but what surprised me was a cough and nasal congestion that lasted for about an hour. Does that happen to anyone else? Then about 3 hours later I had rumbles in my bowels. And then it took a week to come right.

And last night I must have had a bit of gluten as I had the same reactions, within a couple of hours of my meal, without the nasal congestion, but I still had the cough. It must have been the pickle! So by deliberately sabotaging my diet a few weeks back, I knew almost immediately last night what was going on

I had to try the gluten as I wanted to know what sort of reaction I would have, and of course it is so different to reactions I had before being diagnosed. It is a total different ball game now. But it scares me enough not to deliberately eat anything with gluten in it.

Cathy

Life is too short for bad coffee!

BoulderEm Newbie

I get nasal congestion too, where my nose turns red and I can't breathe through it for about an hour or so...weird.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,904
    • Most Online (within 30 mins)
      7,748

    AnneSN
    Newest Member
    AnneSN
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.