Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It A Coincidence That I Have These Symptoms.


JerryK

Recommended Posts

JerryK Community Regular

I've put stars** by the symptoms that I have. Hmmm starting to REALLY wonder here.

I thought I was normal....

Signs and symptoms

The diverse range of coeliac disease symptoms may make it difficult to diagnose. There are over two hundred symptoms that have been identified; not all people have the same symptoms; some people have no symptoms at all; and the symptoms may mimic other diseases. Thorough lists are available[1][2].

Gastrointestinal or digestive problems occur in some coeliacs. It used to be thought that all coeliacs had diarrhea, weight loss, and nutritional deficiencies, but it is now known that only a small percentage have these symptoms. The wide range of digestive symptoms include everything from canker sores to diarrhea** to constipation to nausea**. Many of the symptoms may mimic other diseases such as irritable bowel syndrome, reflux, or even Crohn's disease and coeliac may be misdiagnosed as any of these. Other symptoms that may occur are bulky, pale, offensive-smelling stools which may float in the toilet bowl**,excess flatulence, infrequent, minor rectal bleeding** or persistent pain in the abdomen.

Some symptoms appear to be caused because the villi are unable to absorb nutrients. Some examples are osteoporosis, damage to teeth enamel**, anemia, fatigue, rapid or unexplained weight loss, overweight, failure to thrive or stunted growth in children, etc. Yet other symptoms appear to be emotional, such as depression and irritability**. Dermatitis herpetiformis is an itchy blistering skin disease that occurs in some coeliacs and is considered to be an external manifestation of coeliac disease.

While some untreated coeliacs may be symptom-free, they are still doing damage to their small intestines. Regardless of the presence or absence of symptoms, the disorder is associated with an increased risk of osteoporosis, miscarriage, certain types of intestinal cancers, and other auto-immune disorders.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

You have very valid reasons to get tested for celiac disease. If you test negative, you should still experiment by eliminating gluten from your diet. A lot of people think it's normal to feel a little bit crummy all of the time. That's because most people do feel a little bit crummy all of the time. If you look at a typical diet of an average person, it's no wonder.

It's totally possible to get rid of all of those symptoms if you find the right diet for you. For me, it's no gluten, no dairy, no soy and very limited packaged foods. I hope you find what works best for you. :)

JerryK Community Regular

I just talked to my twin, who also has severe enamel hypoplasia. He has pretty severe joint and muscle pain, arthritis like symptoms, serious gum problems, mouth ulcers and "burning tongue". Different symptoms than mine but also consistent with celiac disease. If one identical twin has it, I'm guessing the other one probably would. Hmmmm.

Nancym Enthusiast

Actually, identical twins don't always get it even if one does. Sometimes even though you have the genes, whatever it takes to activate them doesn't happen. But it sounds to me like you two do have a possible issue!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748

    Cwbtex
    Newest Member
    Cwbtex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.