Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itchy Rash. Is This Related To Celiac Disease?

Kelly J.

Recommended Posts

Kelly J. Apprentice
Kelly J.
Posted

Hello! I got a positive blood test for celiac about a month or so ago. I've been told to continue to eat gluten until my endoscopy on 5/26, so I've got about six more days to go. Around May 3rd I got this really itchy rash on my neck and partially on my face. My doctor put me on prednisone and it went away. Well it's back again on my face near my eye, cheek and ear. Both times I had this rash I've had a tingling sensation in my lips, wierd. It starts out as a small bumpy red patch, then after a day or so spreads into raised, kinda puffy, bumps the color of my skin (except on my ear where it's really red) and EXTREMELY itchy. I've looked up Dermatitis Herpetiformis,, and saw pictures. I don't have blistering or extreme red color that I saw in those pictures of Dermatitis herpetiformis looks like. I guess what my question is, could this still be related to celiac? Does dermatitis herpetiformis always look like it does in the pictures on the internet or does it vary? I'm really puzzled at what caused this, as I've not done anything new to cause an allergic reaction to anything. Any insight would be greatly appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SueC Explorer
SueC
Posted

Yeah it can be celiac related. I have had itchy skin for years. I have several different types of rashes, one of which is dh, and the others I just assume go along with it. Sometimes I will itch and there is no rash at all!! Most of it went away after going gluten-free but my ears still really itch. I get flare ups now and again but it is much better than it was.

You might try taking benedryl at bedtime if itching is keeping you up.

Hang in there. It will probably get better but it will take awhile :)

Ursa Major Collaborator
Ursa Major
Posted

Hi Kelly. Yes, I am sure it's celiac disease related. Hang in there, you've almost made it to your test date (my birthday ;) )! After the biopsy is taken, go gluten free immediately, as you should be gluten-free no matter what the endoscopy says. I am sure the rash will start getting better as soon as you stop eating gluten.

I used to get rashes (including what looked like acne on my face), terrible itching all over and obviously DH as well, now those rashes are usually gone, unless I get glutened.

Kelly J. Apprentice
Kelly J.
Posted
  • Author
Yeah it can be celiac related. I have had itchy skin for years. I have several different types of rashes, one of which is dh, and the others I just assume go along with it. Sometimes I will itch and there is no rash at all!! Most of it went away after going gluten-free but my ears still really itch. I get flare ups now and again but it is much better than it was.

You might try taking benedryl at bedtime if itching is keeping you up.

Hang in there. It will probably get better but it will take awhile :)

Thank you for your input Sue and Ursula! I can't wait to start eating gluten free! I hope this rash goes away soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.