Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where To Get Blood Tests Done?


ssauners

Recommended Posts

ssauners Newbie

:huh: Hi,

It's been a whlie since I've been here,but I'm glad to be back. Reading and learning here has been so helpful to me. I took myself off gluten 2 yrs. ago bec. someone suggested it might help me.I was suffering from constant gas,bloating,cramps,and constipation.Going gluten-free seemed to help but i didn't give me enough relief.

I went to a new GI dr. in Oct. and he listened to me list of symptoms and said I have IBS w/C.He gave me Zelnorm and that was it.I came home and researched what to do to help the IBS.The diet I found has made me feel so much better.

So I asked my dr. to do a new blood test to see if maybe I don't have celiac disease.(prev. tests were neg. but I had been gluten-free) Anyway,I ant to be sure this is done rt.

I see that certain labs are suggested as being better able to give accurate results.Does anyone know how I can have my blood work checked there? The dr.'s nurse said I could have it done anywhere,but not in his office.

Hope someone has some ideas.Thanks so much,Suzy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kalo Rookie

Hi Susz. Do a search for Enterolabs or celiac testing. Enterolabs has a non invasive stool test that is MUCH MORE reliable than the blood tests are. What sort of diet are you on? Hugs, Carol B

angel-jd1 Community Regular

Enterolab isn't covered by insurance (at least not most) and also isn't accepted by most mainstream medical doctors. So if you do get a diagnosis from Enterolabs, most doctors do not accept it(yet, maybe never?). If you have problems with either of those things, then it is not for you.

-Jessica :rolleyes:

kalo Rookie

That brings up another question. Why do we need a doctors blessing or diagnosis if we know for sure through the stool test that is what we have? I know it's expensive but I keep hearing how reliable it is and to me that means everything.

:-) Hugs, Carol B (just curious, not putting anyone down)

angel-jd1 Community Regular

Kalo-

Here is a whole thread full of reasons why to get a formal diagnosis:

Open Original Shared Link

-Jessica

ssauners Newbie

Hi all

Thanks for your helpful ideas.

I had Entrolab do my gene tests,but wasn't brave enough to do the stool test.

Since I have been doing so well lately I am questioning whether I really have celiac disease. The IBS idiet I am on is what I term the

A.F.M.C.C.C.IF(AVOID FATS,MILK,CAFFEINE,CHOCOLATE AND USE CAUTION W/INSOLUBLE FIBER--insoluable fiber needs to be cooked and eaten only w/soluable fiber) diet.

I am now adding gluten products so I can be retested.

It seems so strange to me that I can now eat these things w/out having a reaction.

Really makes me wonder if I only have IBS.

I figured I'd just do this challenge fr 3 months and then have blood work done to see.

Now I am wondering if I should go ahead and have the stool test done,or if since I am doing so well to just go w/the blood tests.

I saw that there are 4 or 5 places that are reliable for having the tests done,but none are near me.

Was just wondering if there is a way to have the blood drawn locally and sent to them(then again I know nothing about medical stuff so don't know if this is feasible)

kalo Rookie

I just saw the post on WHY you need a formal diagnosis. So HOW does one do that if they have negative blood tests but a positive stool test from enterolabs and their doctors don't accept it? I won't have any problems since my doctor put me up to this in the first place. Just wondering about others and why doctors won't accept Enterolabs. He is a doctor (Dr. Fine) and it seems pretty reliable. Maybe others can find a new doc that will accept it. We go through this on my thyroid group. Trying to find a doctor that thinks outside the box and listens to the patients. Just curious. Hugs, Carol B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

One reason there is so much skepticism about Dr. Fine's tests (and I'm still a skeptic), is that he doesn't not publish studies for peer review or share his process with the medical community. The responses from him that have been posted on the question that I have read imply the belief that other doctors should just believe him without going through the peer review process. The cynic in me thinks he's doing this for business reasons, to keep other labs from being able to do this testing and take business away from him, but that may not be the case at all.

European doctors, who are much more advanced in studying this disease, are starting to develop stool tests themselves, and are using a peer reviewed and scientifically accepted way of going about it, so there may be other stool tests available in the future, and it may possibly vindicate Dr. Fine's tests.

kalo Rookie

Is it possible he's to busy doing what he's doing to take the time for peer reviews? Treating thyroid with Armour is the same way. Doctors don't accept it. Or guaifenesin for Fibromyalgia. Dr. Paul R. St Amand hadn't been through the peer reviews either (he wrote the book on this treatment). However I was a part of a support group with many women who had improved by his treatment and didn't care about peer reviews. In my book if something works, that's proof positive. Don't even get me started in my UNBELIEF in the placebo affect. LOL Hugs, Carol B

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,851
    • Most Online (within 30 mins)
      7,748

    Mamabear66
    Newest Member
    Mamabear66
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.