Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vh1 Behind The Music Kid Rock

Guest nini

By Guest nini
in Publications & Publicity

Recommended Posts

Guest nini
Guest nini
Posted

Ok, so I'm watching behind the music on Vh1 about Kid Rock and they bring up Joe C, and how because he had Celiac Disease it stunted his growth and then the reason he died was because of Celiac? I'm confused... The only thing that makes sense to me is that he knew what was wrong, but was either not on the diet at all or unaware that beer and certain alcohols contained gluten, or somehow had been told there was no cure and therefore didn't do anything about it...

It's sad. I was THRILLED to hear Celiac mentioned on Vh1, but sad to think that this young man actually died from it. And I thought MY growth was stunted... I'm the shortest in my family at 5'1", but Joe C, he was shorter than my 6 year old. And now I'm concerned that anyone watching that hears about him dying from Celiac, but doesn't understand exactly what it is and what causes it... and then if they were to find out they have it too, would they think OMG this is going to kill me???

I mean, crap, I literally was dying before my dx, but since my dx I am healthier than ever, and I just can't see someone who is taking care of their diet to actually die from this. He had to not be following the diet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GravStars Contributor
GravStars
Posted
Ok, so I'm watching behind the music on Vh1 about Kid Rock and they bring up Joe C, and how because he had Celiac Disease it stunted his growth and then the reason he died was because of Celiac? I'm confused... The only thing that makes sense to me is that he knew what was wrong, but was either not on the diet at all or unaware that beer and certain alcohols contained gluten, or somehow had been told there was no cure and therefore didn't do anything about it...

It's sad. I was THRILLED to hear Celiac mentioned on Vh1, but sad to think that this young man actually died from it. And I thought MY growth was stunted... I'm the shortest in my family at 5'1", but Joe C, he was shorter than my 6 year old. And now I'm concerned that anyone watching that hears about him dying from Celiac, but doesn't understand exactly what it is and what causes it... and then if they were to find out they have it too, would they think OMG this is going to kill me???

I mean, crap, I literally was dying before my dx, but since my dx I am healthier than ever, and I just can't see someone who is taking care of their diet to actually die from this. He had to not be following the diet.

i think someone said on another forum about celebrities with celiac that he had the type that didn't respond to the diet... not sure though. but i'm pretty sure he drank a lot of beer and alcohol, and probably not the gluten-free kind. i mean, he was in Kid Rock's band.

Nantzie Collaborator
Nantzie
Posted

Yea, I'm guessing that he wasn't 100% on the diet, which we all know might as well be nothing. So if he was having a beer here and there, or just eating the meat and cheese out of an already-made sandwich, he was probably getting a lot of damage. You have to be really strong about insisting on what's required. If your friends don't get it, or hassle you about it, I'm sure it's really easy to just not make a big deal about it. And being on the road, eating fast food at least sometimes, I'm guessing it was next to impossible, even if he was trying to be really stringent about it.

Nancy

Smunkeemom Enthusiast
Smunkeemom
Posted

I heard (from a completely unreputable source, so if it's wrong...you know) that he had other health problems caused by celiac (untreated celiac before he was diagnosed) that made it difficult for his body to respond to the diet.

I can't remember what forum I read it on, and it was just what a poster said who "knew him" or whatever so it could be a big huge rumor (which I probably shouldn't have repeated) :ph34r:

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

First and foremost understand CELIAC KILLS!

I have watched several family member die from this disease in disguise. What I'm learning after my journey and discovery, reading some of the latest books out since 2004 that with celiac disease, autoimmune diseases, some-of-us commonly over time develop secondary food intolerances and even allergies. Doctors are re·al·iz·ing it's an even bigger problem. Things they told us were good for us; (like soy) now is bad. And other issues factor into getting better like our mainstream drugs are cross contaminated from many of the dyes used in pills.

It, celiac disease and going on the gluten free dairy free diet was a-cake-walk for about 4 or 5 years. Then all of a sudden It grabbled ahold of me. It gives you a false sence of hope, now I'm fightening again.

Everyone is different in where they are at in the process of the disease. Joe C struggled with it. And yes, living like a rock-star isn't easy. What they make look so easy and cool.... is very hard on their bodies livin on the road touring. Most of the bands; KID ROCK does, they have managers and staff (w/a doctor) that travels and cares for the stars every needs while on tour. But forget that, it doesn't mean a thing, most docs still don't get celiac disease, or really know how to treat it beyond handing us a few pages about avoidance. Or treating the symptoms.

Here are a couple links

Open Original Shared Link Open Original Shared Link and Open Original Shared Link

nini -- And you're so right about being thrilled celiac disease is on VH-1. Me too! People are getting educated about celiac disease and that's great. It gets people talking about it from the TV show "House" and articles in the NY Times to its in granny's "Readers Digest". Hope they re-run the show, I'd like to see it.

Guest nini
Guest nini
Posted

I know that undiagnosed Celiac can kill, but what scares me is the "diagnosed" aspect of this story. If he KNEW what he had and it still killed him, the question is why? And the only logical answer is that he wasn't 100% gluten-free, which is like not being gluten-free at all...

I very nearly almost died from this disease... I was having SOOOOO many complications from it before my dx, that my Dr. said that I was so close to dying that I had no choice but to start the diet IMMEDIATELY, no cheating ever and I did start getting better. I still worry that I did too much damage to my body before my dx, I too drank A LOT of beer in my early 20's (well hell, throughout my 20's) and ate a lot of gluten filled foods. My diet was full of them. No wonder I was so ill.

I'm just thrilled that Celiac is getting mainstream attention. And I was just shocked to hear it mentioned more than once on Vh1 as the cause of Joe C's short stature and his death.

LKelly8 Rookie
LKelly8
Posted

He had a rare form of the disease, refractory sprue. It doesn't respond to a gluten free diet. The only medical treatment is long term corticosteroid use to control the imflammation, and unfortunatly that leads to brittle bones, short stature, weight gain, a round appearance to the face (called "moon face" by doctors - thanks Doc, thanks alot <_< ) and a host of other problems - and that's on top of the celiac.

If I had been him, I'd smoke, drink and hang out with rock stars too. B)

Here's a link. . .

Refractory Sprue

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

thanks...

and now today I heard that Heather O'Rourke (the child star in Poltergeist) also died from complications from Celiac. That she had been misdiagnosed with Chron's and then died from a septic infection from a bowel blockage caused by a genetic defect and aggravated by undiagnosed Celiac. Has anyone else heard this? She died at 13.

Smunkeemom Enthusiast
Smunkeemom
Posted
thanks...

and now today I heard that Heather O'Rourke (the child star in Poltergeist) also died from complications from Celiac. That she had been misdiagnosed with Chron's and then died from a septic infection from a bowel blockage caused by a genetic defect and aggravated by undiagnosed Celiac. Has anyone else heard this? She died at 13.

all I can find that's "official" is that she died of "acute bowel syndrome" which when I google that I get IBS, which IMO is BS. Maybe she did have celiac maybe she didn't, maybe I don't google properly :P I will keep looking though.

Guest nini
Guest nini
Posted

It was very briefly mentioned on some tv show about child stars... don't know what channel, hubby was flipping through the channels and we caught the tail end of that story.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
thanks...

and now today I heard that Heather O'Rourke (the child star in Poltergeist) also died from complications from Celiac. That she had been misdiagnosed with Chron's and then died from a septic infection from a bowel blockage caused by a genetic defect and aggravated by undiagnosed Celiac. Has anyone else heard this? She died at 13.

I often wondered what really happened to that little girl. Not to change the subject but -- Didn't a few people died on that movie? Open Original Shared Link Here is info.

In my study of celiac disease they say many unexplained deaths (on the operating table) like my grandmother having a rountine gall bladder operation die because of unDX'ed celiac disease.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,005
    • Most Online (within 30 mins)
      7,748
    Peg55
    Newest Member
    Peg55
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Celiac getting dentures

      By captaincrab55 · Posted

      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Aretaeus Cappadocia · Posted

      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.