Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Raleigh/cary, Nc


Dana

Recommended Posts

geeze Rookie
:)

Hi Leah in Raleigh,

I haven't heard anything from my post in a number of days. Maybe your post is the answer to my prayer today! Thank you for taking the time to reply. I have a couple of questions if you don't mind. How did Dr. Kohagen diagnose you (i.e. blood test, biopsy etc.)? Also did he talk in depth about the diet changes you need to make? Was he upbeat and encouraging about how these changes would improve your health? As a newly diagnosed celiac, did you leave his office feeling like you could improve your health with diet changes. If you read my previous post, I need a doctor to help my mother-in-law see that she needs to be vigilent with her diet if she wants to improve her health and that "cheating" every so often is only going to sabotoge previous effort (mine and hers). She really needs this to come from a medical professional and not her son and daughter-in-law and printed pages from the internet. I think it is hard for her to realize that the diet does make a big difference because she is 76 years old and aging. I think she just thinks she is getting old and falling apart anyway so why deprive herself so much at this point. Thanks in advance for answering my questions and best wishes with improving your health with diet. There is so much good information online and so much support from other celiacs, if you are on this message board you are off to a good start!

Thanks again,

Dana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



geeze Rookie
I'm needing a recommendation for a knowledgable doc in Raleigh, NC area. This is for my mother-in-law whose GI diagnosed her with possible celiac in Nov. 2004. We learned over the telephone, but knew something about the disease because of a friend who has it. We immediately made the changes, emptied her pantry and eleminated gluten from her diet. Within three weeks she went from death's door to feeling "human again". Unfortunately the GI gave her ignorant advice at a follow-up and since then we have had a hard time convincing her how important the diet is. Now she is anemic and failing again and we need help!!!! Her primary doc know nothing. Any advice is much appreciated.

Hi Dana: I live in Durham, am 68 years old and was diagnosed 3 months ago with celiac. I diagnosed myself by reading on the internet. I suggested a blood test to my doctor who felt that because I am somewhat obese, there was no way I could have celiac but agreed to a blood test. She called me two weeks later and was shocked the test had come back positive. I am not sure she knows a lot about it but immediately referred me to a dietician who did know a lot. That was the beginning and internet and forums such as this have helped me a lot. I wish we had a support group in the Durham-Raleigh-Chapel Hill area but short of that, I think telephone communication might help. I would be glad to talk with your mother-in-law if she would like and we can compare notes. I can be reached at ontheeno@nc.rr.com if she is interested in talking. Thanks. Gladys

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,014
    • Most Online (within 30 mins)
      7,748

    Scott Ryan
    Newest Member
    Scott Ryan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.