Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Blood Cells Abnormal


happiestgirl

Recommended Posts

happiestgirl Newbie

Last year (in September of 2005, I believe), I had some routine blood work done, and my doctor told me that my red blood cells were "extraordinarily tiny," and "malformed." He said they looked like frisbees that had been held over an open flame and had twisted and turned at odd angles. He never went into details about it, so I don't know if there is a name for this condition, or even if it is Celiac-related. I've always been anemic, and the last round of bloodwork showed a "dangerously low level" of iron in my blood. I was just Dx'ed with Celiac last month, and am still trying to accept it and understand all the changes I am now required to make and still live a semi-normal life. I do have a family history of Myelodysplastic Syndrome (or "pre-leukemia") in my family, but with all the other life-long health problems I have that are seeming to relate to Celiac in one way or another (or both!), I just wondered if anyone else had this kind of red blod cell thing happen to them. I am a bit confused and very scared. I guess I just don't know how to ask my Doc about it without sounding paranoid or panicky. Any info or insight any of y'all could provide would indeed mean the world to me. Thanks for reading this and many blessings to you and yours.

jenn.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

I have "petite" red blood cells, also. I had a doctor tell me that it had to do with a genetic disorder (that effects those of middle eastern descent?). That doctor was an idiot, she also tried to tell me I threw up because I was bulemic :rolleyes: Right, that whole excruciating pain thing had nothing to do with it.

But I digress...

It's my understanding that small blood cells have to do with iron deficiency anemia, and isn't as big a deal as it sounds. In my understanding, it's iron deficiency anemia. With celiac, we tend to get really bad anemia.

Guest Robbin

Hi and welcome! Love your name-Happiestgirl!

I had severe anemia at one point and the dr. told me a similar thing--sickly red blood cells. I know there are some people on here who have had pernicious anemia as well. I think you have found the right place here (lots of great info) and that you will be feeling better soon. Take care,

Robbin

loraleena Contributor

My red cell are ok, but my platelets are low. Now they think I have an autoimmune disorder that attacks my platelets. What the heck! I wonder is blood issues are related?!

  • 4 weeks later...
coldandhardy Newbie

Last year (in September of 2005, I believe), I had some routine blood work done, and my doctor told me that my red blood cells were "extraordinarily tiny," and "malformed." He said they looked like frisbees that had been held over an open flame and had twisted and turned at odd angles. He never went into details about it, so I don't know if there is a name for this condition, or even if it is Celiac-related. I've always been anemic, and the last round of bloodwork showed a "dangerously low level" of iron in my blood. I was just Dx'ed with Celiac last month, and am still trying to accept it and understand all the changes I am now required to make and still live a semi-normal life. I do have a family history of Myelodysplastic Syndrome (or "pre-leukemia") in my family, but with all the other life-long health problems I have that are seeming to relate to Celiac in one way or another (or both!), I just wondered if anyone else had this kind of red blod cell thing happen to them. I am a bit confused and very scared. I guess I just don't know how to ask my Doc about it without sounding paranoid or panicky. Any info or insight any of y'all could provide would indeed mean the world to me. Thanks for reading this and many blessings to you and yours.

jenn.

Many years ago the family doctor discovered that my blood cells looked malformed (I don't recall if it was the red's or the white's). He suggested it may be cancer so they put me in the hospital for checks. All of the family from many miles around came to see me off (so to speak) over the next week or so. Then it was discovered that I had mono (kissing disease) and that odd looking blood cells are common with the disease! Here I am 40+ years later. Still kicking (and kissing too) :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.