Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Raleigh-durham-ch Area?

queenofhearts

Recommended Posts

queenofhearts Explorer
queenofhearts
Posted

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


olalisa Contributor
olalisa
Posted

Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

queenofhearts Explorer
queenofhearts
Posted
  • Author
Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

  • 3 weeks later...
phakephur Apprentice
phakephur
Posted

Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

queenofhearts Explorer
queenofhearts
Posted
  • Author
Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

No, but that's a great tip! Thanks! I have family in Durham so I get over there fairly often. Do you have any restaurants there that you trust?

Leah

olalisa Contributor
olalisa
Posted
I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

That sounds like a plan! I've been out of town for the past 4 sundays, but we need to meet sometime soon. I'm ALL for trying baked goods :) PM me if you'd like to try to make a plan.

phakephur Apprentice
phakephur
Posted

Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


queenofhearts Explorer
queenofhearts
Posted
  • Author
Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah

Thanks for responding anyway! I was hoping for something cheap & unchainy, but that seems to be the holy grail... my quest continues!

Would you be interested in getting together for an all-gluten-free gathering sometime? I have one other taker... I'm learning to bake gluten-free & have some really tasty recipes. Do you eat sweets at all?

Leah

phakephur Apprentice
phakephur
Posted

oh my god, all the time. I bet I've gained 20 lbs since going gluten free. I never appreciated how helpful a malabsorption disease was in controlling one's weight.

We could get some coffee over at Raleigh Whole Foods some time if you want.

Sarah

  • 2 weeks later...
itskt2u Newbie
itskt2u
Posted

I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

  • 5 months later...
SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted

Hello from Raleigh! I would love to have some local people to talk to about restaurants, recipes, coping, etc. I'm fairly new to this diet (about 5 months now) and would enjoy having some celiac friends that don't make jokes about me being a health nut all the time. It's really hard to explain to everyone about this disease because they think it is some diet 'fad'. If they only new how bad I have wanted a Papa John's pizza since August! :P

Any replies would be appreciated!

  • 2 weeks later...
Tippy Apprentice
Tippy
Posted

Hi! Im actually from the Cary area, and only here during my breaks from school ^-^;; but its awesome to meet others from this area!

  • 5 months later...
geeze Rookie
geeze
Posted
Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

geeze Rookie
geeze
Posted

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

geeze Rookie
geeze
Posted

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

  • 1 month later...
Susan-in-NC Rookie
Susan-in-NC
Posted

Hello! New Dx in Ral area. As of 6/11/2007. Work full time and trying to understand this a bit more. GP is willing to learn and be of assistance, GI guy not so much. I read on another thread "Dr. told me I had Celiac Sprue and to stop eating gluten" Had just about the same speech from my GI Dr. Very little help.

I would love to get together and "learn" a bit more.

Please feel free to contact me!

Susan

  • 4 months later...
vonne Newbie
vonne
Posted
I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

vonne Newbie
vonne
Posted

Hi, I'm from Scotland Co, NC, have been dealing with celiac for about a year. I would love to hear from you about your ways of dealing with it. I have a great Dr. in Pinehurst who has helped me.

Also it would be nice to share some recipes. Hope some of you will respond.

vonne

  • 3 weeks later...
Carol the Dabbler Apprentice
Carol the Dabbler
Posted

I'm in Indiana, but thought you folks in NC might be interested in the Open Original Shared Link. I know very little about the group, having run across their web site in the course of a Google search. I did email them recently, and the webmaster got right back to me with a thorough answer, so they really do exist! Apparently they meet a couple of times per year, but you have to be on their email list in order to get the notices.

  • 5 months later...
ttkling Newbie
ttkling
Posted

Hi:

I know this is an old thread and hope it is not dead.

My wife and I just moved to the Clayton area and are looking for other gluten-free people. We have been cooking gluten-free for about 3-4 years now so have a bit of a handle on this, but are always experimenting with new recipes. So if others would like to get together that would be great. I PMed some of you because I did not know if anyone would check back on this thread.

Todd Klingbiel

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      You're right, doctors usually only test Vitamin D and B12. Both are really important, but they're not good indicators of deficiencies in the other B vitamins. Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer. The other B vitamins can only be stored for much shorter periods of time. Pyridoxine B 6 can...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron. I wondered how it was possible that I had celiac disease...
    3. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    4. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
    5. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,365
    • Most Online (within 30 mins)
      7,748
    candiceelse08
    Newest Member
    candiceelse08
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.