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Celiac And Kidne Problems

porterpotti

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porterpotti Newbie
porterpotti
Posted

I have been diagnosed with Celiac disease as well as Membraneous Glomerulopathy (a type of kidney disease). The doctor says there is no known connection, but I thought that maybe there is because they are both auto-immune diseases. Does anyone else have similar kidney problems along with Celiac?

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Jennas-auntie Apprentice
Jennas-auntie
Posted

Hi! According to some pathologists, Membraneous Glomerulopathy can be almost indistinguishable from Level 5 glomerulopathy caused by lupus. You may not have that of course...but lupus is linked to celiac disease, though perhaps membraneous glomerulopathy is not.

You can also get glomerulonephritis (not membraneous glomerulopathy, but it is another kidney problem) from diabetes, which is also a disease that can be linked to celiac. Most people on hemodialysis for their kidneys here in the U.S. are on it because of diabetes complications or hypertension complications. However diabetic related kidney problems would look different under the microscope.

Maybe no one has done a study yet to prove membraneous glomerulopathy is linked to celiac, since they are only now starting to link it to so many other autoimmune diseases. Good luck!

TCA Contributor
TCA
Posted

There was a thread on this a while back. Vydorscope started it. Do a search and you'll probably see it. My dad had focal and segmental glomerulonephritis and had a transplant 22 years ago. He has a ton of other health problems too. I recenlty found out about my kids and myself having issues with gluten. I would bet money that he does too. He went to his Dr. to get tested and the dr. was dismissive. He's trying to get well enough to go see a specialist in Atlanta. I know there has been a connection found with liver disorders and celiac. It makes sense to me that since the liver and the kidneys are the filters of the body, they would be filtering out the gluten that is toxic to a celiac's body, thus causing damage. This is just my idea on it and nothing I have read, though.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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