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I Need A Better Doctor


khyricat

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khyricat Rookie

I'd rather not drive as far as the doc listed on the SE MI Celiac support groups homepage- its at least an hours drive each way.. but I may do it anyway- I was just told that celiac only shows up in 2 blood tests - the other 2 don't need to be run because they only mean diagnosis a small part of the time, EVEN THOUGH They were what was done to diagnose my aunt AND I told the doctor that. I like the personality of this doc, and she came up with celiac, but she is telling me a) I don't have crohns because there was no damage in my large intestines a year ago, even with an elevated SED level (how they tell mom is out of remission) and my ongoign history of stomach issues they can't possibly be crohns (which isnt' limited to the large intestines, but also attacks the small intestines.. perosnaly I'm leaning towrds food allergy and I have an appointment with my GP about my long list of other symptoms that are non tummy related and to talk to her about switching docs, but I'd like a referral of a trustworthy doc who has dealt with this disease before!

Amie in MI

  • 7 months later...

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ideagirl Newbie
I'd like a referral of a trustworthy doc who has dealt with this disease before!

I don't know if you've checked here already, but there's an alternative medicine place at 2345 S. Huron Parkway in Ann Arbor, near where Huron Pkway crosses Washtenaw. It's easy to spot, because it's located in two huge purple Victorian houses. There are a lot of different practitioners there, all of them holistic/naturopathic, including some chiropractor/MD's, homeopathic doctor/MD's, nurse practitioners, etc. I've heard great things about the place, so it's probably worth checking if there's anyone there who might be well informed about celiac.

Since there are different practitioners, they all have different phone numbers. Here are a couple -- just call and ask if there's a general number, or a way to get information about all the practitioners who work there. (734) 945-4903 (734) 975-2444 734-973-3030

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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