Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease, Mental Health, Quality Of Life And Physical Activity Research Study


lisabarella

Recommended Posts

lisabarella Apprentice

Hello all,

I am writing to introduce myself. I am currently a doctoral student at UNCG in the Exercise and Sport Psychology program and I am researching the impact of exercise on mental health and quality of life in people with Celiac Disease. My other interests include sports nutrition and nutrition for people with allergies, autoimmune diseases, and other chronic diseases. I have Celiac Disease and was diagnosed in July 2003. Three of my family members also have the disease. I am an active exerciser and I enjoy swimming and ultra running. In addition to my teaching and research commitments at UNCG, I also tutor elementary school math and work part-time at the YMCA teaching cycling and weight lifting classes.

In April, I submitted an application to UNCG to complete a Pilot Study on Celiac Disease this summer to study the relationship between physical activity, aerobic fitness, depression, anxiety, and quality of life in Celiac Disease patients.

In the first phase of the study, I will be using questionnaire data to assess physical activity and the mental health variables (that I mentioned above). In the second phase of the study, I will be conducting a V02 max test to measure aerobic fitness, and also use questionnaires to assess the mental health variables. I am hoping that the results of this research study will significantly enhance the public health’s understanding of the relationship between physical activity/aerobic fitness and depression, anxiety, and quality of life in Celiac Disease patients.

If anyone is interested in participating in the research study and completing the survey, please contact me. I can US mail you a survey packet with a postage paid envelope for easy return. If you live near Greensboro, NC and are interested in participating in the fitness testing, let me know also. My contact information is below.

Thank you very much, Lisa

---------------------------------------------------------

Lisa A. Barella

Ph.D. Student in Exercise & Sport Psychology

Graduate Research and Teaching Assistant

Department of Exercise and Sport Science

The University of North Carolina at Greensboro

Room 250 HHP Building

Greensboro, NC 27402

Email: lisabarella@hotmail.com

Phone/Cell (with VM): (336) 253-5539

Fax: (336) 545-4486


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Hello all,

I am writing to introduce myself. I am currently a doctoral student at UNCG in the Exercise and Sport Psychology program and I am researching the impact of exercise on mental health and quality of life in people with Celiac Disease. My other interests include sports nutrition and nutrition for people with allergies, autoimmune diseases, and other chronic diseases. I have Celiac Disease and was diagnosed in July 2003. Three of my family members also have the disease. I am an active exerciser and I enjoy swimming and ultra running. In addition to my teaching and research commitments at UNCG, I also tutor elementary school math and work part-time at the YMCA teaching cycling and weight lifting classes.

In April, I submitted an application to UNCG to complete a Pilot Study on Celiac Disease this summer to study the relationship between physical activity, aerobic fitness, depression, anxiety, and quality of life in Celiac Disease patients.

In the first phase of the study, I will be using questionnaire data to assess physical activity and the mental health variables (that I mentioned above). In the second phase of the study, I will be conducting a V02 max test to measure aerobic fitness, and also use questionnaires to assess the mental health variables. I am hoping that the results of this research study will significantly enhance the public health’s understanding of the relationship between physical activity/aerobic fitness and depression, anxiety, and quality of life in Celiac Disease patients.

If anyone is interested in participating in the research study and completing the survey, please contact me. I can US mail you a survey packet with a postage paid envelope for easy return. If you live near Greensboro, NC and are interested in participating in the fitness testing, let me know also. My contact information is below.

Thank you very much, Lisa

---------------------------------------------------------

Lisa A. Barella

Ph.D. Student in Exercise & Sport Psychology

Graduate Research and Teaching Assistant

Department of Exercise and Sport Science

The University of North Carolina at Greensboro

Room 250 HHP Building

Greensboro, NC 27402

Email: lisabarella@hotmail.com

Phone/Cell (with VM): (336) 253-5539

Fax: (336) 545-4486

This sounds like an interesting study. Are you looking at both dietary compliant and non-compliant? Just curious. Wish I lived closer but don't think you want to fly me across the country :D

TriticusToxicum Explorer
I will be conducting a V02 max test to measure aerobic fitness

Sounds interesting. My wife is an exercise physiologist/personal trainer, so I'm curious would this VO2 max test be the "pedal and p :wacko: ke" test? (she so enjoyed during her studies) Quite a lab from what I hear!

Anyway I'd be happy to participate in the survey I'll email you my info.

lisabarella Apprentice
This sounds like an interesting study. Are you looking at both dietary compliant and non-compliant? Just curious. Wish I lived closer but don't think you want to fly me across the country :D

Yes! We are! We are looking at adhearance to the gluten free diet also. I can send you a survey and a SASE if you want? Send me your US mail address? Where do you live? I will be in San Diego next week. Lisa

Sounds interesting. My wife is an exercise physiologist/personal trainer, so I'm curious would this VO2 max test be the "pedal and p :wacko: ke" test? (she so enjoyed during her studies) Quite a lab from what I hear!

Anyway I'd be happy to participate in the survey I'll email you my info.

The Vo2 max test is on the treadmill. Yes, please send me your US mail address, so I can get a survey to you! Thanks, Lisa

Hi,

Some very nice women called me from NC, I think. I deleted the voice mail. Call me again, please. Lisa 336-253-5539

corinne Apprentice

Sounds like a great study. Is it only for those with confirmed celieac by bloodwork or ?

lisabarella Apprentice
Sounds like a great study. Is it only for those with confirmed celieac by bloodwork or ?

We are interesting in looking at those confirmed Celiac by a biopsy. Lisa Barella

lisabarella@hotmail.com

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.