Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Pain

chgomom

Recommended Posts

chgomom Enthusiast
chgomom
Posted

Hi All

I am a newbie here and went through a couple of yrs of garbage to get my diagnosis only after I fired my doc and went to a rheumatologist and begged him to help me figure out what was wrong.

So...my question is in muscle or bone pain really all that common...I feel like I am in more body ache kind of pain now that I am going gluten free....my eyes are even dry....

Or am I just being a big baby??

Thx all...sorry for asking something that probably been asked a million times...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted

Although muscle and bone pain can be typical with celiac disease (are you G.F yet?)the fact that you mention your eyes are dry made me take notice.

Dry eyes and mouth can be a symptom of an autoimmune disease called Sjogrens disease.

I would go back to the rheumatologist and mention this.

As you have celiac disease you are more prone to other auto-immune diseases

That said,when first diagnosed with celiac disease and you go G.F there can be a period of feeling worse before you get better.

For some coeliacs diarrhoea isn't their biggest symptom-joint,muscle and bone pain can be-and it can take a few months for things to settle down.

Hope you feel better soon,here's a link about Sjogrens

Open Original Shared Link

Guest Robbin
Guest Robbin
Posted

Hi and welcome. Perhaps you have fibromyalgia too. Many of us on here have fibro and you do feel worse before you feel better. As for the eyes, it could be autoimmune, or it could be from general poor health from the celiac. I would talk to your dr., but it could be a matter of being able to absorb nutrients when you heal.

chgomom Enthusiast
chgomom
Posted
  • Author

Hello!

Thanks for the post back, I did have those labs done and it came back negative although it does run in my family. I think I will go back to him a few months after the gluten-free diet and tell him I to run it again.

ebrbetty Rising Star
ebrbetty
Posted

welcome to the board, I was thinking fibro too, the only thing that helps me with my muscle pain is strengthening your core and exercise, sometimes I have to force myself to get up and get on my glider or lift weights but its made a big difference.

judy05 Apprentice
judy05
Posted
Hi All

I am a newbie here and went through a couple of yrs of garbage to get my diagnosis only after I fired my doc and went to a rheumatologist and begged him to help me figure out what was wrong.

So...my question is in muscle or bone pain really all that common...I feel like I am in more body ache kind of pain now that I am going gluten free....my eyes are even dry....

Or am I just being a big baby??

Thx all...sorry for asking something that probably been asked a million times...

Have you had your thyroid gland checked? Thyroid disease is an autoimmune disease that goes along with Celiac, diabetes, etc...

barbara3675 Rookie
barbara3675
Posted

These have all been good suggestions.....fibro and thyroid. I have both and very dry eyes. I take lots of magnesium with malic acid plus Mobic which is a strong anti-inflammitory which keeps the fibro in check (other than some flares during times of stress) and I take Synthroid for the thyroid condition. There are no blood tests for fibro, only ones to rule it out. Best wishes in nailing your diagnosis. Barbara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chgomom Enthusiast
chgomom
Posted
  • Author

Hello all,

The only thing that came back in my blood work ever was Celiac...on a thresh h0ld of 10 I was 24 so more than double the high end of negative, so as a result positive. My thyroid function is normal, but my c3c and c4c are way off and my crp, which is an inflamtion marker in this instance is high as well. I am severly sensitive and my doc thinks because I went so long with them jerking em around saying it was gerd, or needing to "eat better" that I have some neuromuscular aspects coming into play here now :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,206
    • Most Online (within 30 mins)
      7,748
    S.Craigwell
    Newest Member
    S.Craigwell
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.