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Who's Pediatric Gi Ever Requested Parent Results

lilleroy family

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lilleroy family Rookie
lilleroy family
Posted

Has anyone ever had thier child's pediatric GI want their results to compare to their childs results to clarify how to treat thier child? I don't see the correlation between our results, yes we both have it yet I am not symptomatic and she is extremely ill? I also don't really trust this dr to hold to the confidentiality of my results as I have a former spouse involved in this and this dr wants to do a 30 yr familys study on celiacs in familys, so I am really apprehensive to all this. What do you think? Is this going to help my child out or is this guy just climbing the wrong branch still? :blink:

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Boojca Apprentice
Boojca
Posted

There is no reason for your diagnosis/treatment for him to want this informatin, but is he perhaps doing some research on Celiac? I would ask him that, if he is then it would be great to contribute. I mean, if your history can help others get diagnosed more quickly, etc...then yippee! But that's really the only reason I can think of for him wanting that information.

Bridget

tarnalberry Community Regular
tarnalberry
Posted

It sounds like he's asking you to participate in his study, but if he does that, there is legal paperwork you'd be asked to sign, and distinct confidentiality rules. And you absolutely have the right to say no - and it would be medically unethical for him to treat you any differently if you do say no.

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
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      Unexpected gluten exposure risk from cultivated mushrooms

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      Unexpected gluten exposure risk from cultivated mushrooms

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      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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