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9 Month Old Just Diagnosed

andersonfam06

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andersonfam06 Apprentice
andersonfam06
Posted

Hello everyone, my name is Michelle. My son's name is Lanigan. He is 9 months old and was just diagnosed with celiac. I am feeling very overwhelmed by all of this... any pointers would be great. He is a very sick baby right now. It also appears he might have a heart issue, but the cardio doc doesn't want to look into it to much til we are a bit better otherwise.

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AndreaB Contributor
AndreaB
Posted

Michelle,

Welcome to the forum. :D You've come to the right spot to learn about celiac/gluten intolerance. TCA will probably post on here at some point. She has a little girl that is going in for heart surgery next week. I have an 8 month old who I haven't tried gluten foods on yet. He broke out in eczema that didn't clear up until I went soy and gluten free so I know he has some sort of problem with gluten. If you are still breastfeeding you need to make sure that you are gluten free as well since it can pass through the breastmilk. That's how I started on my journey to discover that myself, my daughter and my oldest son are all gluten intolerant. We had testing done by enterolab after I had allergy testing done. There is a lot to learn but just take it a step at a time. TCA started a thread to help new people out and I'm sure she will reference it when she posts. For the safe and forbidden foods list on celiac.com click here. I don't know what you are feeding Lanigan now as far as solids, but you will want to read baby food jar labels if you don't make your own food. When you get to stage 3 foods they typically start adding more ingredients, I'm not sure if stage 2 has the same issues or not. Be sure to ask any questions you have. There are a lot of knowledgeable and loving people here who love to help each other out.

TCA Contributor
TCA
Posted

I posted to your other thread, but in answer as to how to get started, here's a thread I started while back

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    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
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