Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


Linda56

Recommended Posts

Linda56 Apprentice

Just wanting an opinion. I ordered the Screening test for gluten sensitivity (Fecal antigliadin IgA antibody*) from Enterolab. I sent it to them. I ordered that one because I can't really afford to order all the tests. I am hoping that would be the one most likely to let me know if I might have celiac disease. Can someone tell me what they think if I wasted my money it was 99 plus 20 for shipping. Thanks Linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mayflowers Contributor

I just ordered the full panal. I can't afford it but... I was reading a few posts and more than one person said they were satisfied with the testing results. If you do take the results to your doctor, they'll want to order their own tests anyway.

Guest Robbin

Hi and welcome. It was so worth it for me. I cannot speak highly enough of Enterolab. I couldn't afford it either, really who wants to spend money like that if it is for nothing, but they are reliable and if you have questions about your results, they email you an answer pretty quick. I found them to be very professional and right on target with me. I shudder to think what condition I would be in if I hadn't found them. Take care and good luck to you.

Linda56 Apprentice

Thank you both for your replies.

Linda

Ursa Major Collaborator

Linda, you definitely didn't waste your money, at least when you get the results, you'll know one way or the other. They appear to be very reliable and very professional. The stool test is a lot more sensitive than either the blood test or the scope for gluten intolerance.

AndreaB Contributor

I highly recommend enterolab and you won't be disappointed. I had my whole family tested and we didn't really have the money either. I am so glad we did because we found out that 3 of 4 of us have active gluten intolerance. We didn't go through a doctor or anything, just had testing done based on my allergy tests and curiosity. It is well worth the expense. The IgA will tell you whether you have active gluten intolerance. They can't diagnose celiac, but the two are pretty much the same, gluten-free for life.

Sarah8793 Enthusiast
Just wanting an opinion. I ordered the Screening test for gluten sensitivity (Fecal antigliadin IgA antibody*) from Enterolab. I sent it to them. I ordered that one because I can't really afford to order all the tests. I am hoping that would be the one most likely to let me know if I might have celiac disease. Can someone tell me what they think if I wasted my money it was 99 plus 20 for shipping. Thanks Linda

Hi Linda,

I think the test you ordered was the best one to get if you don't want to spend much. It is the one that will tell you whether your body is reacting. The gene test is more for additional info. It doesn't tell you whether your body is reacting at this time. It is expensive, I just did several tests on myself. But I believe the insight it provides is so valuable, I have ordered tests for my children now. I justify it financially because it can alter our lives. I have also been very happy with the staff at EnteroLab. I have called a couple of times now with questions and each time someone answers and politely helps me.

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mayflowers Contributor

Hi and welcome. It was so worth it for me. I cannot speak highly enough of Enterolab. I couldn't afford it either, really who wants to spend money like that if it is for nothing, but they are reliable and if you have questions about your results, they email you an answer pretty quick. I found them to be very professional and right on target with me. I shudder to think what condition I would be in if I hadn't found them. Take care and good luck to you.

Robbin,

My mother told me I was born 95% allergic ..to most everything. I think I outgrew most of them but I shudder to think the testing that would be involved to find all my allergies. Nothing causes a life threatening reaction with me so that is the reason that I haven't been tested before. Now, I'm having stomach problems and I accidently noticed it worsened after eating wheat. First it was only from whole grain bread, now I get some symptoms even from white bread and oats. My weight being up was another suspect symptom.

I wanted to know if you read the Paleo Diet ? This doc thinks people shouldn't eat grains, dairy or legumes. Our ancestors didn't eat these things. It's pretty good read.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.