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Frustrated And Feeling Dumb

chgomom

By chgomom
in Coping with Celiac Disease

Recommended Posts

chgomom Enthusiast
chgomom
Posted

I have totally had to scale down everything to totally all natural, non-packaged, from scartch cooking and eating. The only thing not from scratch are some gluten free cookies, breyers ice cream, and rice bread.

I feel like such a whiny baby...ya know....I look in the fridge and whine to myself (I'm a newbie) and then for a while now as I have been learning how to eat, I would try things I thought were gluten free, or thought would be ok...and I learned....if you aren't sure don't try it. You know...try something and then see if your tummy starts its rumbling....

Anyway.....how stupid am I...I have my answer now to all the crap that had been happening. It just really scary for me, all around. I worry about getting glutened....just stinks....

:((

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eleep Enthusiast
eleep
Posted

It gets better with time and you'll adjust to the new habits. I had the same whinyness myself and it's subsided a whole lot -- although it pops up in spurts now and again -- like the other weekend when, determined to eat dinner out, I took my dining cards and a friend and we ended up trying four restaurants before there was one that could comfortably serve me anything (comfortably for me _and_ them, that is).

I've found that it's helpful to have a bunch of failsafe yummy, easy food things around to help me get over the hump when the stress gets too high. I kind of have to swap this around every so often so there's something I can look forward to that I'm not sick of. For instance, after hearing me complain about my low weight and the lactose issues I've been having (dairy is my favorite high fat thing), my therapist -- who'd just returned from Israel -- told me that I needed to go out and make a meal of stuffed grape leaves, olives, avocado-cashew salad, salami and other antipasti treats that were gluten-free and DF -- new inspiration! All things I love -- so I've been eating this stuff joyously for a couple of days now and feeling much more smug than whiny.

tarnalberry Community Regular
tarnalberry
Posted

Wait until you start having guests over and they start looking in your fridge and are envious of how healthy you are.

It *does* get easier. I know that doesn't help now. But one thing that will help now is to make larger portions and have stuff in the fridge AND freezer at all times as leftovers, so you never *have* to cook.

Ursa Major Collaborator
Ursa Major
Posted

You're NOT stupid, it's not easy to learn all this stuff, it takes quite a while. I have been at this for nine months now, and still make careless mistakes at times. I think it happens to all of us. And the whiny thing.......well, let's just say I am sure you're not the only one who sees all this food that you can't eat, when you didn't think to buy any easy treats for yourself. Sometimes I open the fridge and just close it again in frustration, because I so totally don't feel like cooking from scratch (I am an excellent cook, but for some reason have always hated cooking). And then I just don't eat for a whole day and grumble instead of how unfair it is!

But eventually I have to decide to just 'get with it' and cook, because I will start feeling really sick if I don't. A few times I finally made myself do it after midnight! Now, that is probably dumb! :huh: I hope that one of these days (maybe when I turn sixty :rolleyes: ) I'll smarten up and get over it. (Right, there goes my image of being so perfect, giving all this great advice and following it, too, ha ha :blink: )

sspitzer5 Apprentice
sspitzer5
Posted
I have totally had to scale down everything to totally all natural, non-packaged, from scartch cooking and eating. The only thing not from scratch are some gluten free cookies, breyers ice cream, and rice bread.

I feel like such a whiny baby...ya know....I look in the fridge and whine to myself (I'm a newbie) and then for a while now as I have been learning how to eat, I would try things I thought were gluten free, or thought would be ok...and I learned....if you aren't sure don't try it. You know...try something and then see if your tummy starts its rumbling....

Anyway.....how stupid am I...I have my answer now to all the crap that had been happening. It just really scary for me, all around. I worry about getting glutened....just stinks....

:((

I agree. It stinks. I usually deal with it pretty well (after 1.5 years), but I definitely have times when I am whiny and feeling sorry for myself. I think that's ok, it's not an easy thing to deal with. Only people who have had to do it know how hard it is and not just from a food perspective but also in the form of social isolation and a fear of getting sick. Anyway, just know that you aren't alone in feeling that way.

marciab Enthusiast
marciab
Posted

I get whiny too. And I have to agree with whoever said to add something new to your diet when you get that way. Thinking back, I have done this sooo many times. :D

Ruth52 Newbie
Ruth52
Posted

The time I find myself getting really whiny is when we have a social morning tea at my work and everyone turns up with plates of pastries, cakes, and other gluten laden goodies. They all know I can't eat it. But when I turn up with my fruit platter and yogurt dip they demolish it in no time. I wish they would bring something I could eat and then I would know that they had put some thought into the needs of those they work with.

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    • SamAlvi
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      By SamAlvi · Posted

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    • knitty kitty
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      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
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      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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