Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated And Feeling Dumb


chgomom

Recommended Posts

chgomom Enthusiast

I have totally had to scale down everything to totally all natural, non-packaged, from scartch cooking and eating. The only thing not from scratch are some gluten free cookies, breyers ice cream, and rice bread.

I feel like such a whiny baby...ya know....I look in the fridge and whine to myself (I'm a newbie) and then for a while now as I have been learning how to eat, I would try things I thought were gluten free, or thought would be ok...and I learned....if you aren't sure don't try it. You know...try something and then see if your tummy starts its rumbling....

Anyway.....how stupid am I...I have my answer now to all the crap that had been happening. It just really scary for me, all around. I worry about getting glutened....just stinks....

:((


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

It gets better with time and you'll adjust to the new habits. I had the same whinyness myself and it's subsided a whole lot -- although it pops up in spurts now and again -- like the other weekend when, determined to eat dinner out, I took my dining cards and a friend and we ended up trying four restaurants before there was one that could comfortably serve me anything (comfortably for me _and_ them, that is).

I've found that it's helpful to have a bunch of failsafe yummy, easy food things around to help me get over the hump when the stress gets too high. I kind of have to swap this around every so often so there's something I can look forward to that I'm not sick of. For instance, after hearing me complain about my low weight and the lactose issues I've been having (dairy is my favorite high fat thing), my therapist -- who'd just returned from Israel -- told me that I needed to go out and make a meal of stuffed grape leaves, olives, avocado-cashew salad, salami and other antipasti treats that were gluten-free and DF -- new inspiration! All things I love -- so I've been eating this stuff joyously for a couple of days now and feeling much more smug than whiny.

tarnalberry Community Regular

Wait until you start having guests over and they start looking in your fridge and are envious of how healthy you are.

It *does* get easier. I know that doesn't help now. But one thing that will help now is to make larger portions and have stuff in the fridge AND freezer at all times as leftovers, so you never *have* to cook.

Ursa Major Collaborator

You're NOT stupid, it's not easy to learn all this stuff, it takes quite a while. I have been at this for nine months now, and still make careless mistakes at times. I think it happens to all of us. And the whiny thing.......well, let's just say I am sure you're not the only one who sees all this food that you can't eat, when you didn't think to buy any easy treats for yourself. Sometimes I open the fridge and just close it again in frustration, because I so totally don't feel like cooking from scratch (I am an excellent cook, but for some reason have always hated cooking). And then I just don't eat for a whole day and grumble instead of how unfair it is!

But eventually I have to decide to just 'get with it' and cook, because I will start feeling really sick if I don't. A few times I finally made myself do it after midnight! Now, that is probably dumb! :huh: I hope that one of these days (maybe when I turn sixty :rolleyes: ) I'll smarten up and get over it. (Right, there goes my image of being so perfect, giving all this great advice and following it, too, ha ha :blink: )

sspitzer5 Apprentice
I have totally had to scale down everything to totally all natural, non-packaged, from scartch cooking and eating. The only thing not from scratch are some gluten free cookies, breyers ice cream, and rice bread.

I feel like such a whiny baby...ya know....I look in the fridge and whine to myself (I'm a newbie) and then for a while now as I have been learning how to eat, I would try things I thought were gluten free, or thought would be ok...and I learned....if you aren't sure don't try it. You know...try something and then see if your tummy starts its rumbling....

Anyway.....how stupid am I...I have my answer now to all the crap that had been happening. It just really scary for me, all around. I worry about getting glutened....just stinks....

:((

I agree. It stinks. I usually deal with it pretty well (after 1.5 years), but I definitely have times when I am whiny and feeling sorry for myself. I think that's ok, it's not an easy thing to deal with. Only people who have had to do it know how hard it is and not just from a food perspective but also in the form of social isolation and a fear of getting sick. Anyway, just know that you aren't alone in feeling that way.

marciab Enthusiast

I get whiny too. And I have to agree with whoever said to add something new to your diet when you get that way. Thinking back, I have done this sooo many times. :D

Ruth52 Newbie

The time I find myself getting really whiny is when we have a social morning tea at my work and everyone turns up with plates of pastries, cakes, and other gluten laden goodies. They all know I can't eat it. But when I turn up with my fruit platter and yogurt dip they demolish it in no time. I wish they would bring something I could eat and then I would know that they had put some thought into the needs of those they work with.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,206
    • Most Online (within 30 mins)
      7,748

    S.Craigwell
    Newest Member
    S.Craigwell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.