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Frustrated And Feeling Dumb

chgomom

By chgomom
in Coping with Celiac Disease

Recommended Posts

chgomom Enthusiast
chgomom
Posted

I have totally had to scale down everything to totally all natural, non-packaged, from scartch cooking and eating. The only thing not from scratch are some gluten free cookies, breyers ice cream, and rice bread.

I feel like such a whiny baby...ya know....I look in the fridge and whine to myself (I'm a newbie) and then for a while now as I have been learning how to eat, I would try things I thought were gluten free, or thought would be ok...and I learned....if you aren't sure don't try it. You know...try something and then see if your tummy starts its rumbling....

Anyway.....how stupid am I...I have my answer now to all the crap that had been happening. It just really scary for me, all around. I worry about getting glutened....just stinks....

:((

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eleep Enthusiast
eleep
Posted

It gets better with time and you'll adjust to the new habits. I had the same whinyness myself and it's subsided a whole lot -- although it pops up in spurts now and again -- like the other weekend when, determined to eat dinner out, I took my dining cards and a friend and we ended up trying four restaurants before there was one that could comfortably serve me anything (comfortably for me _and_ them, that is).

I've found that it's helpful to have a bunch of failsafe yummy, easy food things around to help me get over the hump when the stress gets too high. I kind of have to swap this around every so often so there's something I can look forward to that I'm not sick of. For instance, after hearing me complain about my low weight and the lactose issues I've been having (dairy is my favorite high fat thing), my therapist -- who'd just returned from Israel -- told me that I needed to go out and make a meal of stuffed grape leaves, olives, avocado-cashew salad, salami and other antipasti treats that were gluten-free and DF -- new inspiration! All things I love -- so I've been eating this stuff joyously for a couple of days now and feeling much more smug than whiny.

tarnalberry Community Regular
tarnalberry
Posted

Wait until you start having guests over and they start looking in your fridge and are envious of how healthy you are.

It *does* get easier. I know that doesn't help now. But one thing that will help now is to make larger portions and have stuff in the fridge AND freezer at all times as leftovers, so you never *have* to cook.

Ursa Major Collaborator
Ursa Major
Posted

You're NOT stupid, it's not easy to learn all this stuff, it takes quite a while. I have been at this for nine months now, and still make careless mistakes at times. I think it happens to all of us. And the whiny thing.......well, let's just say I am sure you're not the only one who sees all this food that you can't eat, when you didn't think to buy any easy treats for yourself. Sometimes I open the fridge and just close it again in frustration, because I so totally don't feel like cooking from scratch (I am an excellent cook, but for some reason have always hated cooking). And then I just don't eat for a whole day and grumble instead of how unfair it is!

But eventually I have to decide to just 'get with it' and cook, because I will start feeling really sick if I don't. A few times I finally made myself do it after midnight! Now, that is probably dumb! :huh: I hope that one of these days (maybe when I turn sixty :rolleyes: ) I'll smarten up and get over it. (Right, there goes my image of being so perfect, giving all this great advice and following it, too, ha ha :blink: )

sspitzer5 Apprentice
sspitzer5
Posted
I have totally had to scale down everything to totally all natural, non-packaged, from scartch cooking and eating. The only thing not from scratch are some gluten free cookies, breyers ice cream, and rice bread.

I feel like such a whiny baby...ya know....I look in the fridge and whine to myself (I'm a newbie) and then for a while now as I have been learning how to eat, I would try things I thought were gluten free, or thought would be ok...and I learned....if you aren't sure don't try it. You know...try something and then see if your tummy starts its rumbling....

Anyway.....how stupid am I...I have my answer now to all the crap that had been happening. It just really scary for me, all around. I worry about getting glutened....just stinks....

:((

I agree. It stinks. I usually deal with it pretty well (after 1.5 years), but I definitely have times when I am whiny and feeling sorry for myself. I think that's ok, it's not an easy thing to deal with. Only people who have had to do it know how hard it is and not just from a food perspective but also in the form of social isolation and a fear of getting sick. Anyway, just know that you aren't alone in feeling that way.

marciab Enthusiast
marciab
Posted

I get whiny too. And I have to agree with whoever said to add something new to your diet when you get that way. Thinking back, I have done this sooo many times. :D

Ruth52 Newbie
Ruth52
Posted

The time I find myself getting really whiny is when we have a social morning tea at my work and everyone turns up with plates of pastries, cakes, and other gluten laden goodies. They all know I can't eat it. But when I turn up with my fruit platter and yogurt dip they demolish it in no time. I wish they would bring something I could eat and then I would know that they had put some thought into the needs of those they work with.

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

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      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

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    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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