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Feels Like Growing Pains?

catfish

By catfish
in Related Issues & Disorders

Recommended Posts

catfish Apprentice
catfish
Posted

I wasn't sure where else to put this, but since I've been gluten-free I've started having skeletal pain, particularly in my legs, ankles and shins. I'm 33 years old but it hurts exactly like growing pains which I haven't had since childhood. I'm wondering if this could be caused by my body metabolizing calcium unlike it has been able to do previously. Are my bones making up for lost time? Has anyone else experienced anything like this or is this probably just an unrelated problem?

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flagbabyds Collaborator
flagbabyds
Posted

I had pains exactly like that but about 10 times worse and couldmn't walk for 2 omnths

lyndszai Apprentice
lyndszai
Posted

Im getting pains like that all the time now they started when I went back on gluten for my test ive had them for 11 days now and it really hurts.

strack2004 Rookie
strack2004
Posted

Catfish, I still don't know if I have celiac or not, but I do have ankle, heel pains especially in my right foot that are driving me up a wall. I also have shoulder aches and aches in my hands. Since I am older (76 yesterday!) I have thought these to be arthritis. However this heel pain always gets worse when I eat more heavily of gluten. I have been tested for celiac with the blood tests at Mayos, they are in the very low negative range. Am debating whether to go with the diet anyway since gluten does seem to affect my heel/ankle pain. Have had that before and had cortisone shots. Don't want to do the shots anymore. Also may explore further testing at entero labs or possibly ask to have a biopsy at Mayos. I remain on the gluten until I get some more information. I have also begun to have shin pain . Don't know if this addresses your problem or not, the ankle, shin pain caught my attention. Cheers, Strack004

karen149 Rookie
karen149
Posted

Hi,

This is happening to my daughter right now. She's only 3, but I called her endocrinologist yesterday with the same question. My daughter cries that her arms hurt and she is waking up at night with pain. The doctor said it is most likely her system getting back into growing mode and starting to absorb nutrients. :)

  • 3 weeks later...
erica Rookie
erica
Posted

Hi, I actually have this problem when I am not off gluten. I had it for years before I knew I had celiac disease and it stopped when I went off gluten. I am now back on gluten for a short period to have an endoscopy and within 2 weeks of eating it again, my leg pains came back.

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      Celiac support is hard to find

      By tiffanygosci · Posted

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
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      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
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