Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Understand Tests

Nshea

Recommended Posts

Nshea Newbie
Nshea
Posted

Hi all,

I'm new to this message board, so hopefully I got this post in the correct spot. I've been diagnoised by my Dr. with celiac disease even though my biopsy came back negative. I'm trying to figure out what blood test he had me do that he figured this out. When I asked him what the number was he told me but I didn't remember. When I asked him what the normal range was he said to me that in a person without celiac disease the number would be "0". also is this an accurate way to diagnois? I was deffinetly having symptoms and am feeling much better on the gluten-free diet. I went on a splurge last weekend and am still paying for it...so I know I have something realted to gluten even if it is not celiac disease. Just wondering if anyone could shed some light onto this for me.

Thanks so much!

Nicole

Tampa, FL

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


seeking-wholeness Explorer
seeking-wholeness
Posted

Nicole,

Welcome to the board! I'm glad you're here!

Your doctor was probably talking about the anti-tTG antibody test. tTG is a normal component of human tissue, so if you are making antibodies against it, you have an autoimmune disorder--celiac disease. Most doctors don't make a final diagnosis based on this test, however. You might want to pursue a biopsy to confirm the diagnosis (though even this is somewhat unreliable--it could come back false-negative, especially if you are already gluten-free), or request a genetic test to verify that you have the troublemaking gene. I would definitely ask the doctor again about which tests he ran. If the gluten-free diet is helping, your doctor's diagnosis is probably accurate, but further testing is available if you desire it.

Good luck!

Nshea Newbie
Nshea
Posted
  • Author

Thanks so much for the information! I had the biopsy done shortly after he did the blood work and he said he had found no damage (a good thing deffinetly), but did say that I was most likely positive because of the blood work. He suggested I say on the diet to prevent damage in the long run and to prevent the horrible symptoms I was having. He told me at that time the biopsy was of just a very small area, and it didn't really mean much that it didn't show damage. The diet is deffinetly working for me and I do plan to stay on it for life. It just seems every thing I read says you need to have the damage to confirm it. I've been gluteen free (except for a few mistakes and one time on purpose) for 3 months now and am scheduled to return to the doctors office for a follow up early next month. Thanks again for the information! I'm already finding this web page so very helpful!

Nicole

Guest jhmom
Guest jhmom
Posted
When I asked him what the number was he told me but I didn't remember. When I asked him what the normal range was he said to me that in a person without celiac disease the number would be "0".

Is this true? When a person doesn't have celiac disease are their numbers supposed to be 0? The reason I am asking is I finally found my results and all of mine showed up above 0. They are as follows:

Tissue Transglutaminase = 10

ref range (according to lab)

negative - < 20

weak positive - 20-30

strong pos - >30

Antigliadin antibody = 9

ref range (according to lab)

< 24 units - negative

24-30 weak positive

>30 monderate to strong positive

Gliadin AB IGA = 7

ref range (according to lab)

negative - < 20

weak positive - 20-30

moderate to strong pos - >30

Can anyone fill me in on these numbers? I am more curious than anything, I was diagnosed with celiac disease through enterolab and currently on a gluten-free diet and feeling better. :)

seeking-wholeness Explorer
seeking-wholeness
Posted

Stacie,

My intuition tells me that the IgA and IgG tests may be non-zero for reasons other than celiac disease, but that the tTG test really ought to come back with a zero if you don't have celiac disease. My feeling is that individuals with non-zero tTG readings should be treated as either already having celiac disease or as being in the process of developing it. This might be a good question to ask Dr. Fine!

Guest jhmom
Guest jhmom
Posted

Sarah:

Very good idea, I did just that. I will let you know what he says.

  • 1 month later...
gf4life Enthusiast
gf4life
Posted

Stacie, Did Dr. Fine ever get back to you regarding the issue of "0" tTg?

Just wondering.

God bless,

Mariann

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.