Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Post?


CantEvenEatRice

Recommended Posts

CantEvenEatRice Enthusiast

Hi,

I've posted some new topics, but I do not see them showing up? Can someone help me?

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
Hi,

I've posted some new topics, but I do not see them showing up? Can someone help me?

Thank you!

They do show up, just at the very back of the board until a moderator looks at your post, approves it, makes sure it is in the right forum and pins it, which will then bring it to the front of the forum.

You can always find new posts, pinned or not, by clicking on 'View New Posts'.

jerseyangel Proficient
Hi,

I've posted some new topics, but I do not see them showing up? Can someone help me?

Thank you!

Hi and welcome :)

After you post a new topic, a moderator has to read it, determine if it's in the correct forum and then pin it. Since we are not always on line, it may take a little while until it's seen. You can always check the "View New Posts" to see your topic before it's pinned. Here is one of your topics--

Open Original Shared Link

Hope that helps

CantEvenEatRice Enthusiast
Hi and welcome :)

After you post a new topic, a moderator has to read it, determine if it's in the correct forum and then pin it. Since we are not always on line, it may take a little while until it's seen. You can always check the "View New Posts" to see your topic before it's pinned. Here is one of your topics--

Open Original Shared Link

Hope that helps

Thank you so much for the responses!

CantEvenEatRice Enthusiast

Patti-I just noticed that you are allergic to a lot of other foods as well, including rice. What do you eat?

jerseyangel Proficient
Patti-I just noticed that you are allergic to a lot of other foods as well, including rice. What do you eat?

In my previous answer to you, I almost wrote "I can't eat rice, either" :D

I'm actually intolerant to those foods. I eat meats, poultry, veggies (except legumes), a few fruits, potatoes, almonds, olive oil, apple cider vinegar, dark chocolate, tea, and spring water.

For a thickener, potato starch. For milk (in mashed potatoes, etc.), Vance's Dairy Free--which is a potato-based milk substitute. It makes great cocoa!

For treats, I make grain-free chocolate chip cookies, and once in a while drink Boylan Cane Cola (cola sweetened with sugar, not corn syrup).

It's taken a good year to figure this all out. The gluten-free diet was working fine for me until about the 4th month. That's when the other intolerances began to show up.

How about you?

CantEvenEatRice Enthusiast
In my previous answer to you, I almost wrote "I can't eat rice, either" :D

I'm actually intolerant to those foods. I eat meats, poultry, veggies (except legumes), a few fruits, potatoes, almonds, olive oil, apple cider vinegar, dark chocolate, tea, and spring water.

For a thickener, potato starch. For milk (in mashed potatoes, etc.), Vance's Dairy Free--which is a potato-based milk substitute. It makes great cocoa!

For treats, I make grain-free chocolate chip cookies, and once in a while drink Boylan Cane Cola (cola sweetened with sugar, not corn syrup).

It's taken a good year to figure this all out. The gluten-free diet was working fine for me until about the 4th month. That's when the other intolerances began to show up.

How about you?

Oops, I meant to use the word intolerance. Thank you so much for the info! It really helps to hear what other people are eating. I will have to check out Vance's Dairy Free. Most of my interolances seem to have come on after my first pregnancy (my son is 18 months now). However, looking back, I think I had more reactions than I realized (I always assumed it was the wheat before going gluten free) even before my Celiac Diagnosis. I've pretty much been sick since I was a child. Now I think I always had certain intolerances, especially brown rice, but now I have developed so many more including white rice. And what is funny is that sometimes I can eat items with rice flour (such as cookies), but if I eat plain rice or rice noodles, I get horrible stomach reactions. I think what I really need to do is get rid of all rice. But it is difficult because I wish I could have more crunchy snacks besides potato chips! Do you eat peanut butter? Your interolances sound similar to mine so I think I will try to follow what you eat. ~Noelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Unfortunately, I don't eat peanut butter anymore :( All legumes bother me, so I avoid them.

Good luck with everything, and keep in touch! :)

CantEvenEatRice Enthusiast
Unfortunately, I don't eat peanut butter anymore :( All legumes bother me, so I avoid them.

Good luck with everything, and keep in touch! :)

Patti,

How do you make your grain free chocolate chip cookies? I love chocolate chip cookies, but I have been eating ones with rice in them. I need to find an alternative. Thanks!

Noelle

jerseyangel Proficient
Patti,

How do you make your grain free chocolate chip cookies? I love chocolate chip cookies, but I have been eating ones with rice in them. I need to find an alternative. Thanks!

Noelle

Hi Noelle,

I was given a recipe for wheat-free chocolate chip cookies that used a lot of sugar. I tweaked it so that it only uses 1/2 cup. This is the one I came up with--if you would like the original also, I will find it and get it to you.

Patti's Grain Free Chocolate Chip Cookies

1/2 cup Spectrum Organic Shortening (or regular shortening if you use it)

1/2 cup Domino Light Brown Sugar

1 egg

1 tsp. McCormacks Pure Vanilla Extract

1/2 tsp. Salt

1/2 tsp. Baking Soda

1 1/4 cup Potato Starch (I use Ener-g brand)

1 1/2 cups chocolate chips (Enjoy Life Foods makes a soy/dairy free one) Nestle is ok

Combine the shortening, sugar, egg and vanilla in medium bowl. Stir in salt, soda, potato starch and chips. Drop from teaspoon onto baking sheet and bake for 8 minutes at 375. After cooling on rack, store in an airtight container.

These come out like tiny chocolate chip cakes. Lighter than traditional toll house cookies. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.