Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support In Marin County

Katja

Recommended Posts

Katja Rookie
Katja
Posted

I am fairly new to being a celiac, also allergic to Dairy, Casein, and Eggs. Yeast is also on my list, but I am having a hard enough time cutting everything else out so I will still have some yeast here and there. Being german i just cannot go without bread :rolleyes:

Anybody out here in the San Rafael, CA (Marin County Area)? Any support groups? I have been trying to deal with this on my own but it's sometime just very hard. Got glutened again a few days ago, everytime that happens it would be nice to have a group to go to and just get some feedback or simply vent :D

Cheers,

Katja

  • 3 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rebecca47 Contributor
Rebecca47
Posted

I am also newly diagnosed with CS. I live in Rohnert Park about half hour from San Rafael. You can e/mail me if you would like. I have done pretty well my doctor says according to my test. my numbers are way down, and I feel better. Black circles under my eyes are going away. I have gained about 5 lbs. which is good, Ihave a really hard time gaining weight as others probably do too. I know that I still have a lot to learn.

Rebecca

  • 1 year later...
Lena Marie Newbie
Lena Marie
Posted

Hello Katja - I am located in Mill Valley, and was diagnosed with Celiac about 9 years ago. I also love bread, and I have not yet found a Gluten-free bread that satisfies. I have just checked into a another site to find out if there are any support groups in Marin County. I will let you know what I find out. The Support groups for Celiac need to make themselves more visible, and accessible.

Blessings,

Lena

I am fairly new to being a celiac, also allergic to Dairy, Casein, and Eggs. Yeast is also on my list, but I am having a hard enough time cutting everything else out so I will still have some yeast here and there. Being german i just cannot go without bread :rolleyes:

Anybody out here in the San Rafael, CA (Marin County Area)? Any support groups? I have been trying to deal with this on my own but it's sometime just very hard. Got glutened again a few days ago, everytime that happens it would be nice to have a group to go to and just get some feedback or simply vent :D

Cheers,

Katja

  • 8 months later...
Patsy Lou Newbie
Patsy Lou
Posted

I'm in San Rafael and willing to host a mtg. but I'm brand, brand new. I've been trying to do it myself so it's too late to get tested. I feel better eating less gluten foods so I feel I must be celiac.

What do we need to start a mtg?

tom Contributor
tom
Posted

I thought there was a celiac yahoo group that focused on the north bay area, but didn't come up w/ the url.

There is Open Original Shared Link , which may be the one I was thinking of, which gets mentioned on Open Original Shared Link

Good luck :)

Patsy Lou Newbie
Patsy Lou
Posted
I thought there was a celiac yahoo group that focused on the north bay area, but didn't come up w/ the url.

There is Open Original Shared Link , which may be the one I was thinking of, which gets mentioned on Open Original Shared Link

Good luck :)

Patsy Lou Newbie
Patsy Lou
Posted

I checked out the northbay celiac site. Many thanks Tom. It's a very good informational website for any new person like myself .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


grammieb Newbie
grammieb
Posted

hello, I live up in the north bay, Santa Rosa, Rohnert Park area. :rolleyes: I was diagnosed in Aug, 2006. I used to be known as Rebecca 47 on here, but I am here again with a new name. I would like to know where support groups are, but i need to go and I will be on couple days

Patsy Lou Newbie
Patsy Lou
Posted
hello, I live up in the north bay, Santa Rosa, Rohnert Park area. :rolleyes: I was diagnosed in Aug, 2006. I used to be known as Rebecca 47 on here, but I am here again with a new name. I would like to know where support groups are, but i need to go and I will be on couple days

So far I haven't been able to get a return call about support groups. If and when I do, I'll post it.

  • 1 year later...
sfkate Newbie
sfkate
Posted

I live in San Rafael and am trying to navigate the waters of the gluten free lifestyle and living with celiac disease. I am open to sharing any advice, recipes, tips and overall support.:)

Hello Katja - I am located in Mill Valley, and was diagnosed with Celiac about 9 years ago. I also love bread, and I have not yet found a Gluten-free bread that satisfies. I have just checked into a another site to find out if there are any support groups in Marin County. I will let you know what I find out. The Support groups for Celiac need to make themselves more visible, and accessible.

Blessings,

Lena

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      Researchers are working on T cell modification therapy that could one day let celiacs eat gluten.
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    4. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,492
    • Most Online (within 30 mins)
      7,748
    K Zappe
    Newest Member
    K Zappe
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.