Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support In Marin County

Katja

Recommended Posts

Katja Rookie
Katja
Posted

I am fairly new to being a celiac, also allergic to Dairy, Casein, and Eggs. Yeast is also on my list, but I am having a hard enough time cutting everything else out so I will still have some yeast here and there. Being german i just cannot go without bread :rolleyes:

Anybody out here in the San Rafael, CA (Marin County Area)? Any support groups? I have been trying to deal with this on my own but it's sometime just very hard. Got glutened again a few days ago, everytime that happens it would be nice to have a group to go to and just get some feedback or simply vent :D

Cheers,

Katja

  • 3 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rebecca47 Contributor
Rebecca47
Posted

I am also newly diagnosed with CS. I live in Rohnert Park about half hour from San Rafael. You can e/mail me if you would like. I have done pretty well my doctor says according to my test. my numbers are way down, and I feel better. Black circles under my eyes are going away. I have gained about 5 lbs. which is good, Ihave a really hard time gaining weight as others probably do too. I know that I still have a lot to learn.

Rebecca

  • 1 year later...
Lena Marie Newbie
Lena Marie
Posted

Hello Katja - I am located in Mill Valley, and was diagnosed with Celiac about 9 years ago. I also love bread, and I have not yet found a Gluten-free bread that satisfies. I have just checked into a another site to find out if there are any support groups in Marin County. I will let you know what I find out. The Support groups for Celiac need to make themselves more visible, and accessible.

Blessings,

Lena

I am fairly new to being a celiac, also allergic to Dairy, Casein, and Eggs. Yeast is also on my list, but I am having a hard enough time cutting everything else out so I will still have some yeast here and there. Being german i just cannot go without bread :rolleyes:

Anybody out here in the San Rafael, CA (Marin County Area)? Any support groups? I have been trying to deal with this on my own but it's sometime just very hard. Got glutened again a few days ago, everytime that happens it would be nice to have a group to go to and just get some feedback or simply vent :D

Cheers,

Katja

  • 8 months later...
Patsy Lou Newbie
Patsy Lou
Posted

I'm in San Rafael and willing to host a mtg. but I'm brand, brand new. I've been trying to do it myself so it's too late to get tested. I feel better eating less gluten foods so I feel I must be celiac.

What do we need to start a mtg?

tom Contributor
tom
Posted

I thought there was a celiac yahoo group that focused on the north bay area, but didn't come up w/ the url.

There is Open Original Shared Link , which may be the one I was thinking of, which gets mentioned on Open Original Shared Link

Good luck :)

Patsy Lou Newbie
Patsy Lou
Posted
I thought there was a celiac yahoo group that focused on the north bay area, but didn't come up w/ the url.

There is Open Original Shared Link , which may be the one I was thinking of, which gets mentioned on Open Original Shared Link

Good luck :)

Patsy Lou Newbie
Patsy Lou
Posted

I checked out the northbay celiac site. Many thanks Tom. It's a very good informational website for any new person like myself .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


grammieb Newbie
grammieb
Posted

hello, I live up in the north bay, Santa Rosa, Rohnert Park area. :rolleyes: I was diagnosed in Aug, 2006. I used to be known as Rebecca 47 on here, but I am here again with a new name. I would like to know where support groups are, but i need to go and I will be on couple days

Patsy Lou Newbie
Patsy Lou
Posted
hello, I live up in the north bay, Santa Rosa, Rohnert Park area. :rolleyes: I was diagnosed in Aug, 2006. I used to be known as Rebecca 47 on here, but I am here again with a new name. I would like to know where support groups are, but i need to go and I will be on couple days

So far I haven't been able to get a return call about support groups. If and when I do, I'll post it.

  • 1 year later...
sfkate Newbie
sfkate
Posted

I live in San Rafael and am trying to navigate the waters of the gluten free lifestyle and living with celiac disease. I am open to sharing any advice, recipes, tips and overall support.:)

Hello Katja - I am located in Mill Valley, and was diagnosed with Celiac about 9 years ago. I also love bread, and I have not yet found a Gluten-free bread that satisfies. I have just checked into a another site to find out if there are any support groups in Marin County. I will let you know what I find out. The Support groups for Celiac need to make themselves more visible, and accessible.

Blessings,

Lena

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    2. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    4. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    5. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748
    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.