Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

celiac disease Mentioned On Cnn.com


VegasCeliacBuckeye

Recommended Posts

VegasCeliacBuckeye Collaborator

Open Original Shared Link

Too bad the author didn't include rye and barley when defining that gluten is. Actually, it seems like she thinks gluten is interchangeable with wheat. Sometimes they don't do the research..

Still nice to be in the press...I suppose


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

Grrrrrrrr. That's just making me mad! We need them to say "gluten"!

I think I need to go for a run.

ms-sillyak-screwed Enthusiast

Thanks for posting the article.

mle-ii Explorer

Send a letter to the editor (or whatever it is for a website) so that they can correct this info.

LKelly8 Rookie

At least the article was about allergies and the 8-must-list allergins and not about celiac disease. The author did miss use the word gluten. <_<

". . .But thanks to the Food Allergen Labeling and Consumer Protection Act (FALCPA), any food produced after January 2006 containing one of the eight most frequent food allergens (in the linked PDF chart) will now use the common name for the allergen in the ingredient list. In other words, a product containing gluten, known to most of us as wheat, will now say "wheat" on its label. . ."

par18 Apprentice
Open Original Shared Link

Too bad the author didn't include rye and barley when defining that gluten is. Actually, it seems like she thinks gluten is interchangeable with wheat. Sometimes they don't do the research..

Still nice to be in the press...I suppose

Why should they (CNN) get any more right about this than everything else they report!

Tom

ms-sillyak-screwed Enthusiast
Send a letter to the editor (or whatever it is for a website) so that they can correct this info.

Wonderful idea!

This is the link to their site to write. If ALL of us that read this tread type a few words of what we think we might have a voice they will hear.

Open Original Shared Link The link below is more helpful and direct.

CNN CONTACT PAGE Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ms-sillyak-screwed Enthusiast

I just sent an email.

I invited them to visit our forum to get their facts straight and see what some of our real issues are. Like the fact mainstream drugs, and beauty supplies have gluten they don't tell us about. And how we are demanding change. How soy is in everything we can NOT avoid. And how the word gluten doesn't mean just wheat.

Please write to them and fill their mail box. They need to hear from all of us.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 posted a topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,247
    • Most Online (within 30 mins)
      7,748

    Noisette
    Newest Member
    Noisette
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.