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Could Pregnancy Have "triggered" Celiac?


maddycat

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wolfie Enthusiast

I had minor stomach issues during a lot of my life (constipation, gas), but really seemed to get worse after the birth of my children. I was told I had IBS after my son was born and to stay away from the foods that bothered me. Then 6 years later I had DD and my stomach problems got a lot worse. Unexplained diarrhea, not frequent, but enough to make me wonder what was going on. Drs kept saying it was IBS. Then I would get super constipated. Drs said to increase fiber (I was eating Kashi Go Lean, loaded with gluten); while it helped with the constipation, it made the gas & bloating excessive and painful. I finally saw a nutritionist who suggested I get tested for Celiac. Bloodwork was positive and I went gluten-free shortly thereafter. The difference was like night & day.

  • 3 weeks later...

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missmommy Contributor
I just had my first baby 4 1/2 months ago and started having symptoms of Celiac Disease when he was about 3 months. I've been fine most of my life. (From the time I was 1 1/2 years old until I was 3 my parents had me on a gluten free diet. They thought it was caused/triggered by a bad fall I had causing the lining of my intestines to slough off.) From the time I was 3 until now (29 years later) I've been eating everything without any issues. Could pregnancy be a "trigger"? If so, will it go away again or will I have to do the diet forever, if it is indeed Celiac Disease?

I just got my Giliadan antibodies test result back and it is 27.2, what they term "eqivical" which I guess is not really negative but not positive either. I will have an appointment with a GI doc soon to see if they want to do more testing.

I'm currently entirely breast feeding my son. Are there any issues I should know of if I do have Celiac? Should I wait to introduce solids- longer than 6 months? Does my son need to be tested? If so, what test, the gentic marker one that I've read about on this forum? I'm going to start him on vitamin drops just to be sure he is getting what he needs since I may have malabsorption issues. I do make plenty of milk though and my son is thriving so that is good.

Anyway, if anyone can help answer my questions it would be much appreciated!

Thanks!

Marcia

i just found out that becoming pregnant probably triggered my celiac. and after reading a lot of the replys to this post im convinced! im sorry im new to this too and im no help yet. but congrats on the new baby!!!

anerissara Enthusiast

My problems started after having my 3ed baby. I don't know if it was the pregnancy or the fact that I had surgery afterwards (tubes tied, I don't recommend it!) but it was just about 3 months afterwards for me, too.

  • 2 weeks later...
GlutenFree-Amy Newbie

Add me to the list! My main symptom, chronic D, started about 3 months after my oldest son was born, 3.5 years ago. I "controlled" it by eating fiber wafers and not drinking milk. After the birth of my second son 3.5 months ago, I got a lot worse. I also ended up in the ER at 6 weeks PP, very malnourished. I had lost about 20 lbs. at that time and lost another 20 in the 4 or so more weeks it took to get everything figured out. I was down to 90 lbs., only 3 months after having a baby. I, too, was extremely sick of people telling me I lost all my weight so quickly, then people telling me that I need to gain weight... BACK OFF! I was so tired of hearing it and then explaining that I was sick, but didn't know how... It feels so good to know now, and I am doing so much better, just in the week that I have been gluten-free. Pregnancy has definitely triggered mine.

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    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
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