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capecodda

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capecodda Rookie
capecodda
Posted

Hey folks. Just found this site. Had 7 vials of blood taken on an urgent care visit to the Dr after eating multigrain oatmeal...yeeeow! I was diagnosed 6 years ago with IBS and did fine with diet up till the past few months though I do tend to have inconsistand bowels and indigestion a bit. Wondering if other celiacs experienced rapid heart beat, slightly elevated temp., a feeling of food not moving and poor absorption during an episode of Celiac Sprue. I switched to potatos, soups, yogurt, juices, rice noodles with spagetti..beef stew. All these went though fine and on the mend here but ate a tostada for lunch and feeling reactive again. Is there hidden gluten in refried beans..or corn tortillas? Sorry to be all over the place here. Just in the throes of figuring it all out and thankful to be past the wicked multigrain day..putting weight back on and digestive has been very very calm. (Also wanted to ask...do you belch alot when having celiac symptoms ...only way I can explain it is the intestines are working triple time to get these no no grains through..) Also looking for a site that lists foods to stay away from specifically and not just "things with gluten" as I have read that gluten is hidden in many foods.

TIA!

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CarlaB Enthusiast
CarlaB
Posted

Was your tostada from Taco Bell? I wouldn't trust them ... since they touch the other items that have gluten, there's a high chance of crumbs being in the tostada.

Your symptoms sound like they could be from celiac, especially if you get them noticeably when you consume gluten.

Meat, chicken, fish, eggs, nuts, fruits, vegetables, potatoes, rice are all naturally gluten-free depending on how their prepared. That's a starting point for you.

capecodda Rookie
capecodda
Posted
  • Author
Hey folks. Just found this site. Had 7 vials of blood taken on an urgent care visit to the Dr after eating multigrain oatmeal...yeeeow! I was diagnosed 6 years ago with IBS and did fine with diet up till the past few months though I do tend to have inconsistand bowels and indigestion a bit. Wondering if other celiacs experienced rapid heart beat, slightly elevated temp., a feeling of food not moving and poor absorption during an episode of Celiac Sprue. I switched to potatos, soups, yogurt, juices, rice noodles with spagetti..beef stew. All these went though fine and on the mend here but ate a tostada for lunch and feeling reactive again. Is there hidden gluten in refried beans..or corn tortillas? Sorry to be all over the place here. Just in the throes of figuring it all out and thankful to be past the wicked multigrain day..putting weight back on and digestive has been very very calm. (Also wanted to ask...do you belch alot when having celiac symptoms ...only way I can explain it is the intestines are working triple time to get these no no grains through..) Also looking for a site that lists foods to stay away from specifically and not just "things with gluten" as I have read that gluten is hidden in many foods.

TIA!

Was your tostada from Taco Bell? I wouldn't trust them ... since they touch the other items that have gluten, there's a high chance of crumbs being in the tostada.

Your symptoms sound like they could be from celiac, especially if you get them noticeably when you consume gluten.

Meat, chicken, fish, eggs, nuts, fruits, vegetables, potatoes, rice are all naturally gluten-free depending on how their prepared. That's a starting point for you.

Hi Carla. The tostada was at a local restaurant..though I had eggs and cheese this morning too and just read eggs can be a problem. I was doing better and better every day from my most recent intestinal upset..eating potatos, chicken soup, rice, yams..ate multi grqain oatmeal and ended up at the drs. Extreme fatigue, feeling of vessel pounding in intsetines...dry skin...took a whole day to work it through. Since that day I have not touched any of the grains and am re hyrated, no low grade temps, quiet intestines, weight back up. I am very familiar with the diet you wrote above..thanks!

CarlaB Enthusiast
CarlaB
Posted

I have had problems with restaurants that don't specifically have gluten-free menus. Sometimes I'm okay, sometimes not. I've cut out eating out until I feel better ... I know that's not what you want to hear, but it's risky and there's a high chance of contamination at any restaurant.

Some people are allergic to eggs. A large percentage of celiacs have problems with dairy. If your intestine is indeed damaged, you are probably unable to digest lactose. For me, I'm casein intolerant and get the same symptoms from dairy that I get from gluten.

The hardest part about eating out when you're not healed and are still learning, as I am since I'm only 8 months into this, is that you can't trace with certainty what made you sick. I finally cut back to the basics I listed above. When I finally feel good for some time, then I'll expand my list. I was eating out a lot, and trying all kinds of things before, but just only got well to a point.

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
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