Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Kiwis Out There?


tee

Recommended Posts

tee Newbie

Hiya,

Have just discovered this website and wondering if there are any new zealanders about? Or is there are special forum just for us kiwis?

I've been gluten free for almost 3 years now and to be honest, the only time I have a problem with it is when I am invited somewhere and they don't know I'm gluten intolerant, or when I've left home in a rush and don't know where to get some food.

Is this the case for anyone else, any suggestions?

Anyway, just saying hi.

Cheers, Teresa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



westie Newbie
Hiya,

Have just discovered this website and wondering if there are any new zealanders about? Or is there are special forum just for us kiwis?

I've been gluten free for almost 3 years now and to be honest, the only time I have a problem with it is when I am invited somewhere and they don't know I'm gluten intolerant, or when I've left home in a rush and don't know where to get some food.

Is this the case for anyone else, any suggestions?

Anyway, just saying hi.

Cheers, Teresa

Hi

I am in NZ (Auckland), new to this forum also, we have only been in NZ for 6 months, so am still struggling with finding what's gluten-free and what's not, previously from UK where I had no problems, any useful tips would be appreciated!!!

tee Newbie
Hi

I am in NZ (Auckland), new to this forum also, we have only been in NZ for 6 months, so am still struggling with finding what's gluten-free and what's not, previously from UK where I had no problems, any useful tips would be appreciated!!!

Hi Westie,

I presume you are in west auckland then? If you are, have you been to East West Organics in Glen Eden? They supply a lot of gluten-free products. I actually live up in Whangarei. My family live on the North Shore, but I usually just eat at their houses, rather than out when I'm in Auckland. I've found that New World seem to stock quite a few items. I get my pasta from them, San Remo brand. Really good and tastes and looks like the real thing. I like Venerdi brand bread, I get it from the health food shop (it's normally available at New World and Pak n Sav). It's normally about $7 a loaf which is pretty expensive, but they seem to always have extra stock and if you can get it when it's nearly expired, then it is reduced in price and you can just freeze it. I tend to make a lot of stuff myself and have found bin inn and asian supermarkets best for that. As for takeaways, hell pizza do a gluten free base, just have to watch what toppings you get. Muffin Break do gluten free muffins. Up here they only have them on Wed and Thurs (and they always sell out!), but not sure when they bake them in Auckland stores.

Is there anything specific you want to know, I might be able to help.

Oh and welcome to NZ, hope you are enjoying the change.

Cheers,

Kaycee Collaborator

Hi Westie, welcome to here and to New Zealand.

I would like to recommend that you look up mfd.co.nz web site, which has a lists of gluten free, soy free, lactose free items and a few others. It is quite handy.

Also you could look at joining the coeliac society of new zealand or visit their web site Open Original Shared Link it seems to have a few hints and tips.

Cathy

  • 6 months later...
Julie-uk-nz Apprentice

Just wanted to say hi to other celiacs in NZ.

I

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.