Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Malnutrition

Guest Norah022

By Guest Norah022
in Coping with Celiac Disease

Recommended Posts

Guest Norah022
Guest Norah022
Posted

Could anyone give me information on how malnutrition shows itself with Celiac's?

I have been having some symptoms and the only thing we can come up with is malnutrition.

Still trying to get a blood test but my school's health services are not be very cooperative and the symptoms are starting to affect my everyday life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Doll
Guest Doll
Posted
Could anyone give me information on how malnutrition shows itself with Celiac's?

I have been having some symptoms and the only thing we can come up with is malnutrition.

Still trying to get a blood test but my school's health services are not be very cooperative and the symptoms are starting to affect my everyday life.

Weight loss, paleness due to anemia, hair loss, white ridges on fingernails, fatigue, etc. are all commonly seen in malnourishment and thus Celiac.

Celiac symptoms can include the above plus gas, nausea, vomiting, diarrhea, bloating, dark circles under the eyes, panic attacks, and burning sensation in limbs, just to name a few.

Some people get severe neurological symptoms (seizures, hallucinations, etc. as well).

Since you're not a new member, you are obviously on the gluten-free diet? If you are and still have weight loss etc. please see your doctor to rule out other conditions or associated conditions. There are other diseases that can cause similar symptoms that will need treatment that is NOT the gluten-free diet, which is why I think everyone should see a Dr. before doing starting gluten-free to treat their own symptoms. Just my opinion.

Guest Norah022
Guest Norah022
Posted

I was diagnosed with Celiac's by a blood test..have been gluten free since the beginning of June but have been showing these symptoms since November. We have rulled out so many things like inner ear infections and allergies.

Malnutrition was brought up because I do have nutrient definciencies and I am showing symptoms of malnutrition but the doctors don'tbelieve me and won't do the blood test.

Guest Norah022
Guest Norah022
Posted

so is it weird that i am gaining weight instead of losing it? When i first went on the diet i dropped 30 pounds but the past 2 weeks i have put on a few pounds....

myserenityprayer Explorer
myserenityprayer
Posted

I would say you should totally get tested. And you can be malnourished while not being underweight. My doctor told me after seeing my low protein levels in my blood and iron deficiency he determined malnourishment. I am also overweight, have been forever. As has been for as long as I could remember losing 20lbs. would finally get me into the normal weight range for my height. Maybe one of these days I can say I am actually healthy (nourished, feeling great, and a "normal" weight).

Definitely get your blood tested. Supposedly the usual test for Celiac Sprue should include a test for iron levels and other things like your protein levels to deterine if you are malnourished.

Guest Norah022
Guest Norah022
Posted

I have been trying to get in contact with my doctor back home, I am at school right now, to find out what they tested when they tested me for celiac's in may but i have been playing phone tag with him.

I am hoping when I go in to Health Services tomorrow and they see that I look like crap they will do the test on their own.

Guest Norah022
Guest Norah022
Posted
Get your Vitamin A and D levels checked. Most Celiac's are deficient in fat soluble vitamins...A, D, E, K.

Can they do that with just a simple blood test?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Norah022
Guest Norah022
Posted

Talked to my doctor at home this morning YEAH!

He said my blood was testing 2 weeks ago and everything was perfect.

He believes I am having these symptoms because of my protein and calcium issues (I dont' get a lot of them) and also says this could be a sign that I was glutened so looks like not only does my stomach get upset but i get weak and lightheaded

lindalee Enthusiast
lindalee
Posted
I would say you should totally get tested. And you can be malnourished while not being underweight. My doctor told me after seeing my low protein levels in my blood and iron deficiency he determined malnourishment. I am also overweight, have been forever. As has been for as long as I could remember losing 20lbs. would finally get me into the normal weight range for my height. Maybe one of these days I can say I am actually healthy (nourished, feeling great, and a "normal" weight).

Definitely get your blood tested. Supposedly the usual test for Celiac Sprue should include a test for iron levels and other things like your protein levels to deterine if you are malnourished.

It is my understanding that if your calcium levels or intake is low you will not lose weight.

mle-ii Explorer
mle-ii
Posted

Probably more information than most want to know, but I found this particular web page to have a ton of info. Though I will admit I haven't gone through it all yet.

Open Original Shared Link

Mike

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    2. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    4. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    5. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748
    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.