Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Observable Symptoms


RDV

Recommended Posts

RDV Newbie

I have celiac disease (diagnosed in March) but no observable symptoms except via blood tests. I can eat anything with no discomfort whatsoever. Since going gluten-free, my blood counts are back to normal after being anemic. While I'm going gluten-free, I've not been too worried about cross contamination since my health has been normalized. I have a friend with celiac disease who suffers a lot even from traces of gluten. Can anyone tell me if I need to worry about cross contamination when my health is good. It seems that my body can simply tolerate more gluten (via possible cross contamination) than my friend's. Am I unknowingly damaging my system even though there are no signs to indicate any problems?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hjkmatthews Apprentice

Hello,

Well, I'm not an expert but I'm sure everyone will agree that even though you don't show any symptoms, even trace ammounts of gluten in your diet can and will cause damage to your intestines. The fact that you don't really show symptoms doesn't mean a whole lot...some people have celiac disease and NEVER show symptoms, but their biopsy results later show that their intestines are indeed damaged. Your best bet is to be as safe as possible to prevent cross-contamination all of the time, even when you are in 'Good Health'. Hope this helps you out! :lol:

celiac3270 Collaborator

You're doing damage whether you feel it or not......trace amounts affect everyone, it's just some will show visible symptoms (getting sick) and others won't.....you still have to be concerned with cross-contamination

Carriefaith Enthusiast

I think that this is a very good question.

I react to the smallest traces of gluten and I will be sick for at least a day.

My concern is also about cross contamination for example,

Some flavors of lays chips are gluten free but there is a risk of cross contamination. If I eat the gluten free lays chips I get sick from the cross contamination, but if someone else with celiac disease also eats the same chips and doesn't get a reaction does that mean that they get damage to the intestines even though they didn't get a reaction?

So the question is,

If some celiacs are reacting to the "gluten free" lays chips does that mean that every celiac that eats them is getting intestinal damage by eating them?

- Carrie

RDV Newbie

Thanks for your replies...RDV

I'm still wondering if there are varying degrees of damage done to a persons system depending on how severe the gluten intolerance a person has. My blood tests show that I've recovered from the anemia my celiac disease caused. But I know I've eaten foods that look from their labels to be gluten-free only to find out that my friend who has severe reactions has found from experience and from the manufacturers that they are likely cross contaminated. Could it be that my system simply is tolerant to trace quantities while intolerant to larger amounts?

flagbabyds Collaborator

You either have it or don't, there are just sometimes in your life whhen you don't get symptomss.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    2. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    3. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    4. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    5. - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.